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No 3rd round of tx for me now. Acceptance
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Topic: No 3rd round of tx for me now. Acceptance (Read 667 times)
mindy
Senior Member
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Posts: 115
I love YaBB 1G - SP1!
No 3rd round of tx for me now. Acceptance
«
on:
March 16, 2010, 03:25:30 PM »
Hi, I am so sorry I have not logged in for about a month. Yes, farmville is definately addictive. Betty, I never even realized that you are the Betty who I love on farmville. I cannot reply personally to messages from our fellowship for some reason my computer windows messenger won't let me. Thank you for your message Betty, I feel the same way you do, this fellowship and the A.A. fellowship are very dear to my heart, especially veteran members here and old/longtimers friends of Bill W. I also know that I can only stay clean and sober by giving the gift of knowledge, experience, strength and hope to others newly starting with liver problems and also friends of Bill W. I do surrender my will to my higher power, drink is definately not an option, I learned the hard way, but know that I am on the path towards whatever my higher power has in store for me. NOW, I had the 2nd liver biopsy, they had a little trouble getting an IV (I expect that and am used to it) the meds. they tried to sedate me with did not even phase me because of my past addiction, it was not that painful, the hardest part was not drinking any water til after the biopsy. Last Night 3/15/10, I came home from an A.A. meeting and my Liver Doc. called me. He is the director of liver transplant and you are all correct, whatever he decides is what I do, just like following directions from my sponsor and you, my fellowship friends here. He said the biopsy came back pretty much the same as the one in 2006. He does not want me to treat until the new drugs I think the Telaprevir (is that a pill?) is fda approved. He said my liver is in good enough shape to wait til the drugs are fda approved, and that I should not do pegasyst or pegintron again. He said these drugs are already done the clinical trials and they should be approved no later then 2011. I am followng directions one day at a time, he says wait, and so I am waiting. He told me I am the only person who was kinda of sad for not treating now and I explained I wanted to treat while the girls are 6 and I am 49 instead of when they are older and so am I. He said he understoood that but still he wants me to wait. Thank you all for always being here for me. Just for today. mindy
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MissyMouse
YaBB Administrator
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Posts: 3292
Re: No 3rd round of tx for me now. Acceptance
«
Reply #1 on:
March 16, 2010, 04:33:57 PM »
I think waiting is a good thing. Believe me if they had recommended that I wait I definately would have.
Mouse
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1a, Stage 4, cirrhosis
Round 1: 48 weeks from 5/19/06 - 4/13/07
Relapsed 9/24/07
Round 2: 72 weeks from 12/11/07 - 4/21/09
Relapsed 5/27/2009
Round 3: 48 weeks from 12/2/2009 - 10/27/10
Third time's a charm ... SVR BABY!!!!
beingbecky
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Posts: 967
Re: No 3rd round of tx for me now. Acceptance
«
Reply #2 on:
March 19, 2010, 05:51:50 AM »
Hi Mindy,
I also agree with Missy, hey why tourment yourself with tx when you can wait. The kids will be a little older then, so it may be easier with them a little older.
Take care you lil farmville addict you.
Love, Becky
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mindy
Senior Member
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Posts: 115
I love YaBB 1G - SP1!
Re: No 3rd round of tx for me now. Acceptance
«
Reply #3 on:
March 19, 2010, 10:38:04 AM »
Yup, I am just wainting and praying, As long as I don't drink, loose 40lbs, which I am determined to do even without a WII thingy like Missy has, I can walk and walk and walk the 40lbs off. Not to find a soulmate, but too feel more comfortable in my own skin. I always do everything for my kids, family, friends, etc. but never stop to think about what Mindy, the Mindy I am learning through sobriety, should do for my own health. love you and thank God for your friendship. mindy
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