HCV ANONYMOUS
Welcome, Guest. Please login or register.
February 05, 2012, 01:56:30 PM

Login with username, password and session length
Search:     Advanced search
Try our chat.
 Heppers House
Sundays & Wednesdays 7:30 -11:00 pm est


79177 Posts in 8099 Topics by 1229 Members
Latest Member: Reggiesmith770
* Home Help Search Calendar Login Register
+  HCV ANONYMOUS
|-+  Side Effects of Therapy
| |-+  TREATMENT ISSUES (Moderators: 19Dragon52, Doug, Hank's mom, negative1)
| | |-+  treatment
« previous next »
Pages: [1] 2 Go Down Print
Author Topic: treatment  (Read 1642 times)
peterpam
Newbie
*
Offline Offline

Gender: Female
Posts: 6


Hello everybody.My name is Pam.


WWW
« on: April 02, 2010, 03:34:37 PM »

I'm new here & dont really know how all this works. I'm starting my treatment on the 11th.Kinda scared.
Logged

Pam
MissyMouse
YaBB Administrator
Veteran Member
*****
Offline Offline

Gender: Female
Posts: 3265



« Reply #1 on: April 02, 2010, 03:58:31 PM »

Welcome Peterpam!

Treatment can be a little scarey but once you get that first shot under your belt it's like a huge feeling of relief.   What's got ya most scare?  How can I help?  I'm currently 18 weeks into my third round of treatment.

Mouse
Logged

1a, Stage 4, cirrhosis
Round 1: 48 weeks from 5/19/06 - 4/13/07
Relapsed 9/24/07
Round 2: 72 weeks from 12/11/07 - 4/21/09
Relapsed 5/27/2009
Round 3: 48 weeks from 12/2/2009 - 10/27/10
Third time's a charm ... SVR BABY!!!!
negative1
YaBB Moderator
Veteran Member
*****
Offline Offline

Gender: Male
Posts: 1984


Let me think on that a bit


« Reply #2 on: April 02, 2010, 05:17:49 PM »

Yeah...tx can be tough but you wont know until you start. The side affects are different for everyone; some ...about 20%...cruise right through. Others experience some sides...other more sides.
Don't be scared..Just do your first shot and then as you continue through tx you just address any sides you may have as they appear. Your doctor should be more than gracious in giving you things that will help alieviate any sides and get you through this as easily as possible.
What geno type are you?
Chime back in and many here will be of help with suggestions based on what others have gone through or what they themselves went through.
I was a geno type 1 and did 48 weeks of tx and it was successful. I have now been clear for 5 years.
How many weeks of tx do you have to do?
Hope to hear back from you soon!
And once again...welcome to our site.
I know that I could not have made ot without the help of others here when I did my tx. I am sure that you will find the same.

Earl
Logged

you may know somebody in a similar
situation, or you may be in a similar situation, and if your in a
situation like that there's only one thing you can do and that's walk into
the shrink wherever you are ,just walk in say "Shrink, You can get
anything you want, at Alice's restaurant.". A. Guthri
Snowflake
Senior Member
****
Offline Offline

Gender: Female
Posts: 930


TO EACH HIS OWN


« Reply #3 on: April 03, 2010, 09:32:08 AM »

Peterpam, I want to WELCOME you to the site and we look forward to hearing from you..Being scared is natural..I was too!
The most important thing when you start treatment is to keep a possitive attitude..be good to yourself..eating healthy..drinking water and getting the rest your body needs....

Hang In There!!!
    Winona   
Logged

Health is the soul that animates all the enjoyments of life, which fade and are tasteless without it.
       - William Temple
peterpam
Newbie
*
Offline Offline

Gender: Female
Posts: 6


Hello everybody.My name is Pam.


WWW
« Reply #4 on: April 05, 2010, 03:00:29 PM »

Hello.Isaid I was starting tx on 4-3 but when I went to get my meds,it was powder!So the pharmacy had to order prefilled syringes & now I will start tx on 4-11.Today I found out that my genotype is 1 Cry I thought it was 2.So therefore my tx will last 48 weeks. Cry If it starts working so that it can work that long. I've read on the internet that if the meds aren't lowering your numbers,your dr. will take you off your meds.As you can tell-I still have lots of questions for my dr.I know that I have to keep my job no matter how I feel on my treatment. And getting a svr is the most important responce-I sure hope I dont lose my hair.And I'm pretty scared about the serious side effect-loss of vision..I'm sure you have heard all this before.Well I want to be a part of hcv anonymous.I want to make friends & share feelings & cry if I have to(with yall)& I want to laugh & make jokes & still live while I'm on tx!I know I will get help from you guys & I pray that I will be able to help someone.I don't even know you guys but I have a feeling this is where I belong right now.I look forward to chatting with you guys.My name is Pam.
Logged

Pam
Betty W.
Veteran Member
*****
Offline Offline

Gender: Female
Posts: 1096


Before you can achieve, you must first BELIEVE


« Reply #5 on: April 05, 2010, 05:27:26 PM »

Pam, you are really a part of the best forum you could possibly find anywhere.  The people here (when they check in) are the
most caring and compassionate you will ever know ! If you have a question,just ask someone will come along with an answer !

A little about me, I am now 67 years old or young...I found out that I had HCV and probably have had it 33 years ! The doctor I was seeing at the time was determined I was going to treat ! I am also geno 1....I found this website by accident, joined, and Helen
welcomed me in. I found out tons of information.....I have not treated and three years later my new doctor tells me "I will not
even suggest you treat" ! "At your age the treatment would be so much harder and you would have only a 35% chance of cure".
OH, my biopsy showed very little damage and very little fibrosis. I have a sonogram every 3 to 4 months and will have another biopsy in October of this year !

Now it is your turn to tell us all about you ! I do know that treatment is different with everyone......We will be here for you.
I have a friend that worked the whole time while on treatment  teaching HS Spanish ! Great having you with us !
Betty
 
Logged

Its the choices in life that make us who we are, so lets do it right !

geno 1A Biopsy stage 0
DougV
YaBB Administrator
Veteran Member
*****
Offline Offline

Gender: Male
Posts: 1537


« Reply #6 on: April 05, 2010, 06:01:56 PM »

Hey Pam,

Hopefully you'll sail through treatment with no issues at all.  Many do.  For now might as well relax and enjoy the ride.  Lot of people work, some at really demanding jobs. 

In no time at all you'll be an old pro.  It's funny how quickly you will get comfortable with all this.

I did the powder when I treated, actually preferred it to the pre-filled syringes, but I think I'm in a minority of one.  Wink

If we can help, holler.

Doug
Logged

Diagnosed 10/04 1a 3/3
Round 1 2005 48wk Pegintron Relapsed
Round 2 2007-08 39wk Infergen Relapse
9/26/08 Diag. Stage 4
Round 3 Pegasus/Riba/Incivik 6/25/11 -
MissyMouse
YaBB Administrator
Veteran Member
*****
Offline Offline

Gender: Female
Posts: 3265



« Reply #7 on: April 05, 2010, 07:14:02 PM »

Hi Pam,

1.. Yeppers the docs will pull you off the meds if you don't have a 2 log drop by week 12.

2.  I'm on my third round of treatment.  I did a 48 week course, then a 72 week course and now another 48 week course.   So yeah, it's doable.  I actually worked without missing a single day the first 5 months months of my first round of treatment.  I don't work anymore because I suffer from Rheumatoid Arthritis.

3.  Although I had some pretty significant hair thinning, I never lost all my hair ... and I have 4 years of this junk in my system.

We're here for ya!

Mouse
Logged

1a, Stage 4, cirrhosis
Round 1: 48 weeks from 5/19/06 - 4/13/07
Relapsed 9/24/07
Round 2: 72 weeks from 12/11/07 - 4/21/09
Relapsed 5/27/2009
Round 3: 48 weeks from 12/2/2009 - 10/27/10
Third time's a charm ... SVR BABY!!!!
peterpam
Newbie
*
Offline Offline

Gender: Female
Posts: 6


Hello everybody.My name is Pam.


WWW
« Reply #8 on: April 06, 2010, 12:33:48 PM »

Well,this is to you guys that wrote to me.I'm 51.(ouch)I've probably had this for 20 or 30 years.I was in treatment once at Desert Springs-in between Midland & Odessa.About 2 months after I was out,I got a letter from them saying I had it.That was about 6 years ago.Sure wish I could have done treatment sooner but without ins. there was no way.I've got 4&1/2 years clean now.And I've worked for the same co. for 2 yrs. now with good ins.(have never missed a day)I dont know if I should tell my big boss or not.I want to but I'm so afraid he will freak.& I cant lose my job.The thing I'm most scared about treatment is-it not working.Well guys,thanks so much for the support & I will chat with you later.
Logged

Pam
MissyMouse
YaBB Administrator
Veteran Member
*****
Offline Offline

Gender: Female
Posts: 3265



« Reply #9 on: April 06, 2010, 12:43:34 PM »

Do not tell our employer unless you are prepared to expect the unexpected.   I was forced to quit my job of 9  years at a law firm because of harassment.  You are no under obligation to tell them.

Mouse
Logged

1a, Stage 4, cirrhosis
Round 1: 48 weeks from 5/19/06 - 4/13/07
Relapsed 9/24/07
Round 2: 72 weeks from 12/11/07 - 4/21/09
Relapsed 5/27/2009
Round 3: 48 weeks from 12/2/2009 - 10/27/10
Third time's a charm ... SVR BABY!!!!
peterpam
Newbie
*
Offline Offline

Gender: Female
Posts: 6


Hello everybody.My name is Pam.


WWW
« Reply #10 on: April 06, 2010, 12:50:20 PM »

Thank you so much for that info.It helps alot to hear that! Smiley
Logged

Pam
Jazzdenova
Veteran Member
*****
Offline Offline

Gender: Male
Posts: 1032


Kiss me Hep C


« Reply #11 on: April 07, 2010, 03:57:47 AM »

I have to agree with Missy, most of the general public is uninformed and it is not your job right now to educate them. After you are done you can evangilize all you want but for right now you just take care of you. You do not need what I call the self induced stressors. I worked all through my treatment with few sides. I actualy got handsomer and lost weight.... Ok .. just kidding about the weight. Take your time and do some reading, their is this thing called riba rage but if you remember that you are on prescribed drugs you can fend some of the weird feeling off and come in here and rant, cry , laugh and throw up all at the same time. We are here for you, some like me, are insensitive and will poke fun at you but encourage you, others will probably become your best friends or at least show you how to use your computer.
Welcome and enjoy the ride.
And read, read, read. You will probably end up educating your doctor.
Logged

I must be here because I am not all there.
MissyMouse
YaBB Administrator
Veteran Member
*****
Offline Offline

Gender: Female
Posts: 3265



« Reply #12 on: April 07, 2010, 05:58:09 AM »

VERY well said JazzD

Mouse
Logged

1a, Stage 4, cirrhosis
Round 1: 48 weeks from 5/19/06 - 4/13/07
Relapsed 9/24/07
Round 2: 72 weeks from 12/11/07 - 4/21/09
Relapsed 5/27/2009
Round 3: 48 weeks from 12/2/2009 - 10/27/10
Third time's a charm ... SVR BABY!!!!
Betty W.
Veteran Member
*****
Offline Offline

Gender: Female
Posts: 1096


Before you can achieve, you must first BELIEVE


« Reply #13 on: April 07, 2010, 08:25:25 AM »

Stated like a man JazzD.....A lot of truth !!!!

Betty
Logged

Its the choices in life that make us who we are, so lets do it right !

geno 1A Biopsy stage 0
pacman
Newbie
*
Offline Offline

Posts: 6


« Reply #14 on: January 17, 2011, 05:18:26 AM »

Just started Tx; first peg shot went well. Appreciate all the advice about hydration and exercise!
Positive beginning!  Thankful to my creator and for my family.
Logged
Pages: [1] 2 Go Up Print 
« previous next »
Jump to:  

Powered by MySQL Powered by PHP Powered by SMF 1.1.11 | SMF © 2006-2009, Simple Machines LLC Valid XHTML 1.0! Valid CSS!