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Author Topic: I've have hepatist c moderated genotype 1  (Read 2136 times)
billyz
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« on: May 05, 2010, 06:59:19 AM »

I've have hepatist c moderated genotype 1, I have found out yesterday what should i do treatment or no treatment
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Snowflake
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« Reply #1 on: May 05, 2010, 07:35:22 AM »

Welcome billyz, Sorry to hear you have hep c...No one can tell you to do treatment ot not to do treatment.. That is a personal choice, one that has to be weighed by you..The first thing I did when I found out I had hep c was to try and find as much information about hep c as possible.. Then I started reading about the two treatments they have to date..There is info here as well as loads of info online..

I wish you all the best on your journey and look forward to hearing more from you..If you have questions just ask, we will try our best to help you..

TAKE CARE
 Winona
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Hank's mom
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« Reply #2 on: May 05, 2010, 09:09:20 AM »

Welcome billyz -
You have come to good place where you'll always be comfortable and cared for 24/7. I agree with Winona, sorry you have hep c. It is mind-numbing info at first especially. Many people find out more info about their particular case before making the decisions to treat, not treat, wait awhile, whatever. You didn't say if the Doc you saw was your general practitioner or a hep doc. I found out thru my GP who then sent me to a hep c doc and his team. I've been very lucky in who she referred to me. I don't know where you live, but there are lists of best bet places and docs. Start with the American Liver Foundation and they can tell you quite a bit.

Sometimes docs want us to treat ASAP. Others say hold off for awhile for a variety of reasons including viral load and damage to your liver. Some feel that a trial or new equation of drugs (it's kinda like a cocktail) is right around the corner and you would be best off waiting. Then, of course, your own feelings and preferences come in to play. Treatment can be easy as pie for some people and brutal for others - you don't know till you get there. On the flip side, most docs will give you "helper drugs" such as something for migraines, nausea, etc. It is important to seek their approval and/or thoughts before taking anything over the counter because a) it might be in conflict with your treatment. I've had that happen and it's awful. B) the docs are always on the watch for a drugs affect on your liver. This is very important!!! Once all that is taken care of, a phone call away, the docs can help you in find and, if needed, adjust or change the helper drug. It's not a perfect science, but they and we are working on it.

I ho[e I have helped you with good advice, but if you have more questions just let us know.

Susie
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"Find out who's the Victim. If you can't tell, it's you."  –Yardley

"… One hand full with quietness, beats two hands full of vexation of spirit"  – Amarillo Slim

Both referring to the game of poker.
MissyMouse
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« Reply #3 on: May 05, 2010, 12:17:08 PM »

Hi Billy,

Have you had a biopsy yet?  I'm a firm believer in having a biopsy done to determine amount of liver damage before making a decision on whether or not to treat.   There are new drugs coming out in 2011 that may shorten the treatment duration for genotype 1.  If you have minimal damage you  may want to wait for these drugs.  If you have advanced damage then you might want to consider treatment.   I've probably done more treatment than most people (I'm on my 3rd round in 4 years having done 48 week, then 72 and hopefully only 48 this time).  I choose to treat aggressively because I have cirrhosis but my liver is still working.  The hope with me is that my liver will remain functional as long as I'm on treatment.

Mouse
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1a, Stage 4, cirrhosis
Round 1: 48 weeks from 5/19/06 - 4/13/07
Relapsed 9/24/07
Round 2: 72 weeks from 12/11/07 - 4/21/09
Relapsed 5/27/2009
Round 3: 48 weeks from 12/2/2009 - 10/27/10
Third time's a charm ... SVR BABY!!!!
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