HCV ANONYMOUS
Welcome, Guest. Please login or register.
May 17, 2012, 03:39:52 PM

Login with username, password and session length
Search:     Advanced search
Try our chat.
 Heppers House Sundays & Wednesdays 7:30 -11:00 pm est


79320 Posts in 8111 Topics by 1226 Members
Latest Member: boyce535
* Home Help Search Calendar Login Register
+  HCV ANONYMOUS
|-+  Everything in General
| |-+  News - Friends - Prayers and more... (Moderators: 19Dragon52, Doug, Hank's mom, negative1)
| | |-+  Curious Question		 « previous next »
Pages: [1] Go Down Print
Author Topic: Curious Question  (Read 439 times)
MissyMouse
YaBB Administrator
Veteran Member
*****
Offline Offline

Gender: Female
Posts: 3292
« on: June 29, 2011, 01:32:01 PM »
I was recently interviewed over the phone by a representative for Vertex pharmaceuticals for their mentor program.  I was asked a simple question, or what would seem like a simple question to most, and thought it might be interesting to hear your responses, especially since so many are going to be starting treatment now that the new drugs are approved ... so here goes ... can't wait to see what everyone else says ...

What is the one thing you would tell someone who is recently diagnosed with HCV?

My answer was:  Life goes on.  Life is not going to stop and stand still just because of a hepatitis diagnosis.

Mouse
Logged
1a, Stage 4, cirrhosis
Round 1: 48 weeks from 5/19/06 - 4/13/07
Relapsed 9/24/07
Round 2: 72 weeks from 12/11/07 - 4/21/09
Relapsed 5/27/2009
Round 3: 48 weeks from 12/2/2009 - 10/27/10
Third time's a charm ... SVR BABY!!!!
willy
YaBB Administrator
Veteran Member
*****
Offline Offline

Gender: Male
Posts: 6179
« Reply #1 on: June 29, 2011, 02:42:53 PM »
I am interested in the program and will read up on it.  i assume it is for TX experienced people.  i have a few friends who were "Vertex Ambassadors".

My major fear was that this was going to be a life ending disease.  I think the one thing that i would tell any newly diagnosed person is that it is largely cureable.

Somehow i think Vertex would like that response.   Wink

willy
Logged
Hank's mom
Global Moderator
Veteran Member
*****
Offline Offline

Posts: 2066


"It ain't braggin' if you done it." - Dizzy Dean
« Reply #2 on: June 30, 2011, 03:23:37 PM »
Hey Missy -
I would probably say that don't invite fears and worries by being over-prepared before they come up. There are those who have no major sides and also clear. Basically it's a crap shoot, we're all guinea pigs with no promises made in advance of going on treatment. Just take things as they come up, mention that they MAY, and to not be shy about speaking to your doc or practitioner comfortably and with any questions, weird reactions, or what nows.
Susie
Logged
"Find out who's the Victim. If you can't tell, it's you."  –Yardley

"… One hand full with quietness, beats two hands full of vexation of spirit"  – Amarillo Slim

Both referring to the game of poker.
Snowflake
Senior Member
****
Offline Offline

Gender: Female
Posts: 936


TO EACH HIS OWN
« Reply #3 on: July 01, 2011, 08:34:43 AM »
Hello All, I think the one thing i would tell someone is to gain as much knowledge as possible about Hep C and the treatment options..as well as it is generally a slow progressing disease...

Take Care
 Winona
Logged
Health is the soul that animates all the enjoyments of life, which fade and are tasteless without it.
       - William Temple
Betty W.
Veteran Member
*****
Offline Offline

Gender: Female
Posts: 1097


Before you can achieve, you must first BELIEVE
« Reply #4 on: July 06, 2011, 06:29:52 PM »
Winona, how are you ? Long time no hear.....hope you are doing well...

Betty
Logged
Its the choices in life that make us who we are, so lets do it right !

geno 1A Biopsy stage 0
Snowflake
Senior Member
****
Offline Offline

Gender: Female
Posts: 936


TO EACH HIS OWN
« Reply #5 on: July 07, 2011, 07:05:08 AM »
Hello Betty, I'm doing ok, just dealing with chronic pain issues, doctors appts and labs..Life after tx hasn't gotten any better..
I stop by everyday and post now and again..usually don't get much response, so i don't spend much time at posting..
I have taken up a new hobby raising chickens, trying to keep myself busy..As well as having my grandkids during summer break..
How are things going for you? I still have the recipe for the figs, hubby brought some home the other day, so i will be putting it to use again...Take Care..Winona
Logged
Health is the soul that animates all the enjoyments of life, which fade and are tasteless without it.
       - William Temple
DougV
YaBB Administrator
Veteran Member
*****
Offline Offline

Gender: Male
Posts: 1547
« Reply #6 on: July 07, 2011, 03:28:10 PM »
'cuse me.....

Recipe for fig what?

Doug
Logged
Diagnosed 10/04 1a 3/3
Round 1 2005 48wk Pegintron Relapsed
Round 2 2007-08 39wk Infergen Relapse
9/26/08 Diag. Stage 4
Round 3 Pegasus/Riba/Incivik 6/25/11 -
Snowflake
Senior Member
****
Offline Offline

Gender: Female
Posts: 936


TO EACH HIS OWN
« Reply #7 on: July 08, 2011, 11:39:59 AM »
Hello DougV, Hope your sides are better and you are doing well..

Betty gave me her mothers recipe for Fig preserves, it is really good..

Take Care
 Winona
Logged
Health is the soul that animates all the enjoyments of life, which fade and are tasteless without it.
       - William Temple
Jazzdenova
Veteran Member
*****
Offline Offline

Gender: Male
Posts: 1059


Kiss me Hep C
« Reply #8 on: July 11, 2011, 11:13:58 AM »
After long and fleeting thought....

Welcome to the club.... your iniation fee and dues are payable to me....
Logged
I must be here because I am not all there.
MissyMouse
YaBB Administrator
Veteran Member
*****
Offline Offline

Gender: Female
Posts: 3292
« Reply #9 on: July 11, 2011, 11:41:45 AM »
LOL Jazz, I so needed a laugh.

Mouse
Logged
1a, Stage 4, cirrhosis
Round 1: 48 weeks from 5/19/06 - 4/13/07
Relapsed 9/24/07
Round 2: 72 weeks from 12/11/07 - 4/21/09
Relapsed 5/27/2009
Round 3: 48 weeks from 12/2/2009 - 10/27/10
Third time's a charm ... SVR BABY!!!!
Pages: [1] Go Up Print 
« previous next »
Jump to:  

Powered by MySQL Powered by PHP Powered by SMF 1.1.11 | SMF © 2006-2009, Simple Machines LLC Valid XHTML 1.0! Valid CSS!