Missy

[RiverRandy]

Missy

I am glad to hear that you are doing much better. I have not been on the site for awhile.  I will receive my Triple threat meds this Wednesday Oct 19th and will start round 2 on Nov 7th. I can't believe that this treatment is so expensive for the medication, my doctor told me it cost $50,000 I will take the Inciviek for 12 weeks with the combination of the Ribavirin and Pegasys for 24 or 48 weeks. Due to the bad reactions to th Ribavirin last time, round 1 2007 - 2008 I had to stop the Rivavrin after about 6 weeks.  Now they want to add the incivek which has it own side effects, rash , blisters itching . If I have any reactions to those meds they will stop the treatment.  I know there are patients out there that can't afford these meds or treatment and If I can't take them I  am willing to give to someone that could use them.  I know they said you an not give medication from one patient to another but due to the great cost and some patients don't have the insurance to start the treatment or can't afford the preminums.  I am very anxious to go thru this again but what the hell I am ready to try again.

Randy

[MissyMouse]

Hi all, sorry for the disappearing act this week.  Bill's 52 year old cousin passed away suddenly of a massive heart attack and we had to take off to Chicago.  It was very sad.  Cousin Ron was on of cherished first responders, a fiirefighter.   He went out for a jog and never came home.

Kristi, so nice to see/hear from you.  What a wonderful thing to be with your family.  Unfortunately we let the chat close down last October due to lack of interest.  I was hoping to reinstate it once everybody quit waiting and started the new therapy.  Unfortunately once everyone started treating again I was diagnosed with breast cancer so that has put a little damper on things.  I will put more effort into the chat situation after I recover my third surgery which should be sometime in January.  Of course my situation has been keeping my sweet Billy a bit busy also.  On a positive note, my 6 month post PCR after my 3rd round of treatment showed I was clear.  I go for my 1 year PCR on Monday.

Doug, I do have the picture from week 4. I'll get it to ya soon. They injected me with 125 cc's of saline in each breast which is A LOT (most women get 50cc).  I'm actually in between a 38B and 38 C chest now.  Incisions still not healed all the way.  Due to the large injection this time they start spacing my injections out to every 2 weeks instead of every week.  I have 3 more injections to go and then we start talking about surgery for the permanent implants.

Breast cancer sucks right up there with Hep C haven't decided which is worse yet.  If I get that "cure" label from breast cancer 6 months post then I'm going to say Hep C is worse.

Mouse

[MissyMouse]

P.S.   I'm also on facebook under Missy Grace Diehl Flynn if anyone is interested.  I spend a lot of time these days playing Farmville LOL.  That's being taken off of RA meds while fighting breast cancer does to ya LOL


Mouse