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Partners ~ Spouses ~ Caregivers & LiverTransplant Support Forum
Partners ~ Spouses ~ Caregivers Support Forum
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New Member
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Topic: New Member (Read 906 times)
valle
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I love YaBB 1G - SP1!
New Member
«
on:
November 16, 2004, 09:47:18 AM »
Hi - I just found this website and this makes me happy! My husband has been on tx since mid-July and now has been told he can continue for the entire 48-week regime (which means mid-June). I don't think I can last. He is so snappy and misunderstands and is a worse temperment than ever. And he denies it. He does admit to occasionally having symptons (fatigue, etc.) but feels he can handle this all without any impact on me or our 10-year old. Well, there's impact! I'm glad to read all the other posters. THis is very helpful! Thanks. Valle
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Joni
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Re: New Member
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Reply #1 on:
November 16, 2004, 10:24:16 AM »
Valle,
Welcome to a great board. As one who is on TX (36 of 48 weeks), I know I have been very different from my former "normal"self. I'm grumpy, touchy, cranky, angry, etc at times when before i wouldn't be. My partner would gladly confirm this!
If possible encourage your husband to check out this board to get support for himself.
For you, keep coming back and build a support network for yourself. My partner was and still is cruical to my getting through tx. No way, i could have done tx without support.
joni
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"If you have only one smile in you, give it to the people you love." Maya Angelou
"stuck in the ice without my clothes, naked as the eyes of a clown." John Prine
OZ
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Re: New Member
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Reply #2 on:
November 16, 2004, 12:01:45 PM »
Valle
I feel for you. I finished treatment 4 months ago. I was an absolute bear to live with for well over a year. First the stress of diagnosis, then the agony of the decision whether to treat or to wait, then treatment itself. My husband had the patience of a saint. Helped me every inch of the way. Took me to doctors' appointments, work, you name it, he did it. Helped me into the bathroom when I was too dizzy to walk. And I griped most of the time. I can imagine it must be really hard on you and the child though. I know I hated being told I was crabby, irritable or anything else I didn't want to hear. It would be nice if your husband would be accepting and get some support. Sounds like you could use some support yourself. I know my husband went to lots of AA meetings (and still does) when I started treatment.
The only advice I can offer is to try to take it one day at a time, take some time to take care of yourself. It seems like a long time right now, but before you know it, it will be over. This too, shall pass is a saying I heard in another program.
Hopefully, some of the spouses will share some tips on how to put up with us.
Take care and God bless you.
Donna
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willy
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Re: New Member
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Reply #3 on:
November 16, 2004, 01:59:20 PM »
Valle; Good to have you here. I agree that this board can help both parties; the person on TX and the person who has to live with them. If your husband is interested...... have him do some reading. I'm sure he will be able to identify with few people. Anti-depressants are sometimes also used, not only to help correct depressive behavior, but to curb behavior which changes from what was once normal. I'm not promoting anti-depressants but they have helped some here. Likewise, they are some here that have just toughed it out over the haul. They may feel that just taking the treatment is enough of an assault on the body. There is plenty of reading her that can aid with the decision, should the topic come up. Just realize.....that you are seeing behavior which is somewhat drug induced. Frankly.......if you deprive me of sleep....I'll get cranky after a day or two. I can't imagine feeling sick and sleep deprived for weeks and months.
Welcome to the board.
Willy
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