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Side Effects of Therapy
TREATMENT ISSUES
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18th week of tx
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Topic: 18th week of tx (Read 1765 times)
lefty
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18th week of tx
«
on:
December 05, 2006, 10:16:16 AM »
It. been a while since I have posted much...
The weather here in Okla took a drastic turn last week 70'S daytime AM---
5-15 inches of snow the next day.
The fatigue and "worn out feeling" really has not gone away!
Mentally, i am feeling somewhat better: that is I feel like (I think), that I can do more ...
but the reality is n fact , that I got to a point of calling for help after shoveling snow for 10 minutes!!
I am so beat, worn out , DEPLETED of any known resource for energy besides personal
drive and consequently sanity , that provide some sort of determination to complete or even
begin a task.
Doing laundry about kills me!
, taking a shower the same
and the big one
--------PUTTING ON SHOES THAT HAVE laces (boots in this case).
QUESTION ---IS THIS STILL NORMAL?
(AT WEEK 14- I HAD A V/L TEST , CBC, AND CHEM 14,
ALL WAS GOOD
MY COPIES COUNT WAS 242?
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nialla
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Re: 18th week of tx
«
Reply #1 on:
December 05, 2006, 10:37:56 AM »
hey Lefty;
congratulations on good test results and making it this far.
it is ABSOLUTELY normal to be feeling the way you described
i found that as time went on, i felt more run down as the medicine accumulates in your system
i take darvon to get me through the day, it gets rid of my aches and pains and allows
me to work and take care of a young child. without it, everything would be a chore, even
the most mundane tasks seem like it requires a lot of effort. hang in there.
*nialla
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robin
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Re: 18th week of tx
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Reply #2 on:
December 05, 2006, 10:09:22 PM »
Lefty...the good report on your labs was nice to receive since you are having a hard time physically and with fatigue...it always makes it better to know you are responding. Is there any way you can arrange to have like a 30-60 minute rest break during the day? Like you...I found the fatigue frustrating and it was beneficial to be able to take a break. Is there a way you can get someone to come in like every other week and help around the house and yard? You may need to give up some of your daily chores and let things go. Other people won't notice...most things I found I saw as needing to be done...other's didn't think it was as bad as I did. Wishing you good rest both physically and mentally. Keep your spirits high...robin
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Genotype 1-A
Liver Recipient 11-22-2007
Keep your spirits high...robin
OZ
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Re: 18th week of tx
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Reply #3 on:
December 06, 2006, 03:58:03 AM »
Lefty
Yes, your fatigue sounds perfectly normal. I had it for most of 48 weeks. I know it feels like a heck of a long time at week 18 -- but you are over 1/3 of the way through. My doc even tried ritalin to give me a little boost. I think it helped for a while. I had so much joint pain though that my pain meds pretty much knocked me down.
Ask for help -- don't shovel snow if you can't make it. I little exercise is good, they told me, in my case, a half a flight of stairs did me in. Rest when you need to --watch tv, sleep. Winter is a great time to just veg out.
Do you have any family or friends that can help you? I know the old beatles tune was true, "I get by with a little help from my friends".
Hanv in there.
Donna
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scooter 1
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I love YaBB 1G - SP1!
Re: 18th week of tx
«
Reply #4 on:
December 06, 2006, 06:53:19 AM »
Hi Lefty what you are going thru is normal for most of us and our mind always thinks it can do more than what our bodys can take but you hang in there. like you said you are a third of the way thru it Keep up the fight and cong on your test results. Hope that gives you the strengh to keep up the fight.And it is good to hear you post. hope to hear more from you.
Scooter1
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remember you can beat hepatitis with the right knowledege, therapy,and support
lefty
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Re: 18th week of tx
«
Reply #5 on:
December 12, 2006, 02:15:12 PM »
Hi folks
Besides #19 really not being as bad as (past) or as expecyd
I got some kind-a flu (I can' really tell )
I still have
"extra' more severe SYMPTOMS THAT COULD BE EITHER EI: SIDES OR A REAL CASE OF THE FLU ??
The only thing I know some side are betteer and some are worse???
I'm still kickin and ordered a harness and saddle for the dragon "cause I' plannin to ride that
beast A.S.A.P. it'll be a few weeks of course 29 + weeks from now , but it never hurts to plan
for the future.
Thank Again to every one that has responded and to Glen for haaving insight and wisdom
enough to help a site like this be as helpful and as available
CM
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robin
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Re: 18th week of tx
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Reply #6 on:
December 12, 2006, 10:33:58 PM »
Lefty...don't answer if you aren't comfortable but where in OK are you located. I'm listed in Oklahoma City at Baptist Integris. That is a great hospital but I'm now seeing a hepatologist in my own state of Arkansas. I'm really glad the sides are getting a bit easier to deal with. Keep your spirits high...robin
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Keep your spirits high...robin
lefty
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Re: 18th week of tx
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Reply #7 on:
December 12, 2006, 11:58:31 PM »
OKLAHOMA!
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robin
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Re: 18th week of tx
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Reply #8 on:
December 13, 2006, 12:00:38 AM »
Sorry if I was being too nosy by asking...just thought we might have used the same hepatologist since I go to Oklahoma City. Didn't mean to get in your business. Wishing the best for you and keep your spirits hisgh...robin
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Genotype 1-A
Liver Recipient 11-22-2007
Keep your spirits high...robin
airmaner
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Re: 18th week of tx
«
Reply #9 on:
December 13, 2006, 02:34:05 AM »
Quote from: nialla on December 05, 2006, 10:37:56 AM
i found that as time went on, i felt more run down as the medicine accumulates in your system
i*nialla
Sorry for the reality check, but...
The Peg-Intron product information sheet pharmacokinetics section states that the "mean trough concentrations" increase 3-fold at week 49 compared with week 4.
Eric
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lefty
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Re: 18th week of tx
«
Reply #10 on:
December 13, 2006, 11:11:05 AM »
<<<ROBIN>>>
BRAIN FART
THE SIMPSONS ARE ALIVE AND WELL IN TULSA
I DID'NT EVEN PLUG IN TO THE QUESTION,
I LIVE IN TULSA OKLA
i AM 53 RELATIVELY BORED BUT VERY THANKFUL
[attachment deleted by admin]
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lefty
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Re: 18th week of tx
«
Reply #11 on:
December 13, 2006, 11:15:04 AM »
SHORT MEMORY LAPSE---
MORT SHEMORY COLLAPSE!!
CM
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MissyMouse
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Re: 18th week of tx
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Reply #12 on:
December 14, 2006, 07:26:42 PM »
Lefty,
Call your doc if you're side seem to be worse. I'm in week 30 and the past 3 weeks have been rough. I found out this morning that I do indeed have the flu.
Missy
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1a, Stage 4, cirrhosis
Round 1: 48 weeks from 5/19/06 - 4/13/07
Relapsed 9/24/07
Round 2: 72 weeks from 12/11/07 - 4/21/09
Relapsed 5/27/2009
Round 3: 48 weeks from 12/2/2009 - 10/27/10
Third time's a charm ... SVR BABY!!!!
nialla
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Re: 18th week of tx
«
Reply #13 on:
December 17, 2006, 07:57:36 PM »
Sorry for the reality check, but...
The Peg-Intron product information sheet pharmacokinetics section states that the "mean trough concentrations" increase 3-fold at week 49 compared with week 4.
Eric
eric,
i'm not exactly sure what this means
can you explain it to me.
thanks
*nialla
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19Dragon52
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Prayers & God's Blessings
Re: 18th week of tx
«
Reply #14 on:
December 20, 2006, 01:28:34 PM »
(((Lefty)))
Wonderful Chinese Dragon pic!!!! Thanks for Sharing!!!!
I've been finished with 48 weeks of treatment since 9/22/06 and I still have *mony mamments of sort hemory* Hang Tight, okay?!
xoxoxo's........
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~We Cannot Fail Unless We Quit Trying~
Love,
Joyce aka 19Dragon52
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