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Author Topic: Question for those already TP'd  (Read 1378 times)
robin
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« on: September 17, 2007, 06:02:55 PM »

OK...I'm feeling a tad overwhelmed after speaking with anethesia a couple of weeks ago...the last thing required for TP here in Arkansas. Oklahoma required an implanted port for IV access...now I am told I will still have an femoral arterial line, a radial arterial line threaded into my heart in case they have to place me on bypass during surgery, a subclavian IV catheter and a plain old IV in the arm. I guess I wasn't expecting that many lines and then the grand NG tube down the nose and one down my throat into my stomach to measure pH until I'm pulled off the ventiilator. My thoughts are...this feels like over-kill. Is this the norm? They did say I would be able to go home on day 4 unless I show signs of rejection so my plans are to be home on day 3 post TP...if it happens. They have now told me I can't go out of state and must remain in contact with my TP team...even if I just go to my daughter's house in Little Rock. I feel like they should implant a GPS chip in me and it would make it easier on us all. Keep your spirits high...robin
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Genotype 1-A
Liver Recipient 11-22-2007
Keep your spirits high...robin
DougV
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« Reply #1 on: September 20, 2007, 02:56:04 PM »

Robin,

While claiming no expertise, those seem very reasonable precautions.  Besides you gotta have a bunch of beeps and tubes and stuff, I mean where would the fun in a TP be without them?HuhHuh?

On a serious note, you hanging in there okay?

Doug
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Diagnosed 10/04 1a 3/3
Round 1 2005 48wk Pegintron Relapsed
Round 2 2007-08 39wk Infergen Relapse
9/26/08 Diag. Stage 4
Round 3 Pegasus/Riba/Incivik 6/25/11 -
hanklive39
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Happy Hank


« Reply #2 on: September 20, 2007, 07:15:35 PM »

Hi Robin,

I guess I'm the only in here that has experience in what you're talking about (Liver Transplant October  8th, 1997, coming up on TEN years!!!) Grin Grin Grin Shocked Shocked Shocked Cool Wink

Anywho, Everything you described is what they did for me... Although I believe the Anesthesiologist left out a few things that they may or may not do to you...
Now everyone I know that's been transplanted either before me or afterwards, has had a "T" tube inserted into their  abdomen attached to their bile ducts temporarily so that the Dr's can monitor your new liver's bile production rate on a daily basis. You can most likely expect that tube to be in you for at least a couple of months unless you god forbid, encounter complications that would justify not to remove it until everything is stabilized... Shocked Cool

The other thing that they may or may not do to you is to cut open an opening to insert a tube into your main arteries or veins, (I forgot which of the two) in your groin area and underneath your armpit but, they may or may not need to do this to you because, It's only done in the event that they have to use the bypass machine while the surgery is being performed so, take comfort in the fact that if you're petite in size, more than likely they will not have to perform this and age is'nt a factor. Shocked Cool

The main thing that you have to concern yourself with usually after being discharged is coming down with active CytoMegloVirus or CMV... This may or may not occur but, it all depends how much your immune systen has been suppressed so, if you feel like you're getting weak, do NOT HESITATE to go to the ER ASAP!!! Shocked Cool Wink

I say this not to scare you!!! I'm just passing on my own, and alot of folks experiences after transplant!!! The only other thing that might warrant the same reaction would be symptoms of rejection no matter how mild they are!!! Do NOT HESITATE TO GET TO THE ER ASAP!!! Please do not think that you might be turning into a pain in the you know what - to the folks there because, they fully expect these thing to occur so, they'll be prepared for you, especially if they are a center of excellence!!! One last thing about post-op ICU... PLEASE DO NOT PANIC while you're there!!! Just think of it as a vacation, and those folks will be pampering to your every need and soon enough, you'll be out of there!!! Only do'nt for once think that you can force them to release you from those tubes earlier than necessary because, it just will NOT HAPPEN!!! I know this because I tried and failed miserably!! Cry Cry Cry!

Your time in this world as you know it is about to end but, that only means that you need more than ever, to get prepared for your new life that will soon begin!!! A new life beyond your wildest dreams, and that much I'm sure of because, that is what happened to me!!! Now I'm not saying it's going to be easy in the beginning...OHHH MY God - NO!!! However, If you hang in like you did all these years like you've already have, you'll make it through the "hump."  Shocked Roll Eyes Wink

Once you do, you'll think at times that you feel twenty years younger... Remember what I'm about to suggest to you... When you feel like that, you can easily set yourself up for an injury of some sort, or start feeling very weak afterwards so, PLEASE do'nt let those feeling fool you!!! I know, because I did, and I paid dearly everytime!!! So just remember your limitations and you'll do fine Grin Grin Grin

In any event, I'll be P.U.S.H. ing for you as I'm sure others will too!!! Go get em Robin!!! Shocked Grin Wink Cool

P. = Pray
U. = Until
S. = Something
H. = Happens

Dios te bendigas mi amiga!!! May God bless you my friend!!!  Grin Wink Cool

Respectfully,
Henry

P.S. That's my Mom and my two fellow band members visiting on my B'day in the hospital...
Btw, I'm the lead singer (Joe Cocker voice) and I also play the Conga's...
Jeff, who's behind and above me, plays the Bass, and Doug plays the Piano!!! We still play around town on reunions and such. Roll Eyes Grin Shocked Wink Cool

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« Last Edit: September 22, 2007, 02:56:04 PM by hanklive39 » Logged

Well enough to live another day!!!
One day at a time.
Genotype 1a
Liver Transplant 10/08/1997
Been on and off treatment more times than I want to remember - Still fighting though, so NEVER GIVE UP HOPE!!!
willy
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« Reply #3 on: September 20, 2007, 07:24:27 PM »

We're all pulling for you Robin.  You can do it!!

Hank, good to see you....and good to read you too.  10 years is huge.  You serve as a constant reminder that it can be done.  It's nice to have people here who have been there.

willy
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hanklive39
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Happy Hank


« Reply #4 on: September 20, 2007, 07:32:30 PM »

Hi Willy!!!
Thanks and nice to read you too!!! Grin Shocked Wink Cool

Respectfully,
Henry

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Well enough to live another day!!!
One day at a time.
Genotype 1a
Liver Transplant 10/08/1997
Been on and off treatment more times than I want to remember - Still fighting though, so NEVER GIVE UP HOPE!!!
robin
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« Reply #5 on: September 20, 2007, 09:11:56 PM »

Dang...I was hoping to get away with a few less lines but they told me the same thing you did. I was glad they said I could possibly be out of ICU within 24 hours and home on day 4. That's about all I can handle being a patient. I haven't checked lately...but last time...there were 6 blood type O's ahead of me. Oh well...if it happens...Tom will keep those on my e-mail list that I've made as an "update" list to let them know and I'll be on my cell phone as soon as I'm out of ICU. Keep your spirits high and thanks for the response...I kind of figured it wasn't an exaggeration from the DR. but I was hoping for it. Keep your spirits high...robin 
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Genotype 1-A
Liver Recipient 11-22-2007
Keep your spirits high...robin
19Dragon52
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« Reply #6 on: September 29, 2007, 11:56:47 AM »

(((Robin)))

Hey Lady!  It sure all seems to being moving faster & coming closer than when I first met you on this board.  I just want you to know that you are often in my thoughts so I imagine it will continue to be so.  Prayers will always be Plenty!  Serious stuff.

I have a friend back in CA that went through a Liver Transplant about 10 years ago and is doing very well.  I remember at first he had to be on watch regarding several issues but he lives a prosperous life today.  What would we all do if it weren't for the brave that went before us in regards to so many trials & tribulations, eh?  They have given Hope & Opportunities where there maybe never would have been any.

~I am always thinking the Best for You~
Much Love,
Joyce
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~We Cannot Fail Unless We Quit Trying~

Love,
Joyce aka 19Dragon52
robin
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« Reply #7 on: October 06, 2007, 08:59:45 PM »

Thanks Joyce and did y'all see the dimples on Hank? I never noticed them before. AWWWWWW  Wink Keep your spirits high...robin
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Genotype 1-A
Liver Recipient 11-22-2007
Keep your spirits high...robin
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