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Side Effects of Therapy
TREATMENT ISSUES
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Starting Treatment soon, just looking for support really
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Topic: Starting Treatment soon, just looking for support really (Read 5052 times)
kentucky
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Re: Starting Treatment soon, just looking for support really
«
Reply #45 on:
February 27, 2008, 11:23:25 AM »
hope the next shots are easier
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A real friend is one who walks in, when the rest of the world walks out.
negative1
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Let me think on that a bit
Re: Starting Treatment soon, just looking for support really
«
Reply #46 on:
March 16, 2008, 09:42:58 AM »
Hey there Ket,
Haven't heard from you.
Wassup?
Earl
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you may know somebody in a similar
situation, or you may be in a similar situation, and if your in a
situation like that there's only one thing you can do and that's walk into
the shrink wherever you are ,just walk in say "Shrink, You can get
anything you want, at Alice's restaurant.". A. Guthri
Pancho and Lefty
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distant relatives
Re: Starting Treatment soon, just looking for support really
«
Reply #47 on:
August 27, 2008, 03:21:15 PM »
Just bumped into this. The guys doc 'doesn't used bx to determine suitability for tx.' Baby, I'm amazed. Would love to hear about the tx adventures. . . . that first shot didn't sound too promising.
Anybody ever get a PM from KM?
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geno 3A--24 wk tx--SVR
"Love is just a song we sing. . . fear's the way we die. . . . "
jolee39
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Re: Starting Treatment soon, just looking for support really
«
Reply #48 on:
November 05, 2008, 08:03:59 AM »
Hello,
I'm new at this I will be starting treatment on November 14th for the first time. Honestly I am scarred to death of this treatment and all the side effects.
I have a 4 year old grandson whom I am raising and the doctors said I wouldn't be able to continue to care for him alone while on treatment that really freaks me out, because I don't get much help and he is my heart and I don't want to be to ill to care for him. I don't want to loose our time together. I have had my meds since July but I have been procrastinating taken them for a long time.
My viral load is over 5 million and my liver damage is at stage 2, I only found out I had hep this past May.
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J.L. Wallace
MissyMouse
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Re: Starting Treatment soon, just looking for support really
«
Reply #49 on:
November 05, 2008, 08:20:37 AM »
Welcome JoLee,
Sorry to hear about your hep diagnosis. What is your genotype? How long will you be treating. As far as your grandson, well, you may need a little help from time to time but generally you will still be able to care for. There will be periods when you get frustrated and sick, that's when you need the help. Patience my run thin. Treatment is indeed scarey but if you go in to it with a positive "I can do this" attitude it will take you far.
Again, welcome!
Mouse
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1a, Stage 4, cirrhosis
Round 1: 48 weeks from 5/19/06 - 4/13/07
Relapsed 9/24/07
Round 2: 72 weeks from 12/11/07 - 4/21/09
Relapsed 5/27/2009
Round 3: 48 weeks from 12/2/2009 - 10/27/10
Third time's a charm ... SVR BABY!!!!
robin
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Re: Starting Treatment soon, just looking for support really
«
Reply #50 on:
November 05, 2008, 09:08:04 AM »
Hi JoLee...welcome and WOW, I'm a bit surprised that your doctor would tell you that you would not be able to care for your grandchild...I've NEVER heard that one before. No wonder you are so scared you have postponed starting treatment even though you have had the meds since July. Parents do treatment all the time and manage to do so with their families. You may well find you are one who doesn't have a lot of side effects and the sides your have are managable. Keep in mind that most of the sides can be addressed by your doctor and many of us found that our family PCP's were the best source to help with the side effects.
I wish you the best of luck and please come back and let us know how treatment is working out. Give that grandson a big hug and kick some dragon to the ground for both of you. Keep your spirits high...robin
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Genotype 1-A
Liver Recipient 11-22-2007
Keep your spirits high...robin
beingbecky
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Re: Starting Treatment soon, just looking for support really
«
Reply #51 on:
November 14, 2008, 06:18:01 PM »
hi jolee,
Did you get to start treatment today? Anyway, I just wanted to welcome you and let you know people are here for you if you feel like sharing.
Wishing you the best on your treatment journey.
Becky
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19Dragon52
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Prayers & God's Blessings
Re: Starting Treatment soon, just looking for support really
«
Reply #52 on:
November 20, 2008, 08:15:55 AM »
{{{Hi Jolee!}}}
I'm here with the others to see if you got started on TX and if so, how it's going for you.
The couple stats you shared with us are the same as mine were upon starting standard TX. I am/was genotype 1a; V/L 5 million; Grade 2/Stage 2 upon Liver biopsy. I TX'd for 48 weeks and am now 2 years with a sustained viral response. I remember being quite apprehensive before starting TX but as Missy mentioned, your positive "I can do this" attitude will take you far...so will a strong foundation of faith to hold onto. The two will serve you well.
Everyone is different but some of the drug reactions are pretty typical & doable. Whatever comes up you can share it here on the board and there will be folks that can give you excellent input, friendship,
emotional support, whatever you may need at the time. And of course sometimes there are only situations that your doctor can handle. Yep! It can be a rollercoaster ride but for me, I found staying in the day helped the best in getting me through to the next day. Then again, if my memory serves me well, more than most days actually did sail smoothly! I won't swear to that, though!
I know I have all the folks on this website to THANK.
Keep us posted, okay? You/We can do this!
Love & Support.....
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~We Cannot Fail Unless We Quit Trying~
Love,
Joyce aka 19Dragon52
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