Pegasys in December

[papa57]

Hi Snowflake & welcome to the site. As you already know, there is lots of good people & info here. Helped me immensely when I went through treatment. I am genotype 1a & a nonresponder to treatment. It is an individual choice to treat or not to treat & there is support here no matter which way you go. I am stage 2 fibrosis at last biopsy. My doc said it could be up to ten years to move to the next stage. Not sure that there is a standard on moving to the next stage. Only a biopsy can tell for sure. That might be good information to get. Lots of prayers also helped get me through & I am sending up one for you right now. Take care.
              JACKSON

[Snowflake]

 

[willy]

  Sorry for the late welcome.  The treatment is much more effective now.  Doctors are so much more knowledgable about dealing with treatment.  Your genotype is GREAT.  Just having a board and people to talk to should also help you.  Then you've got your sister to help you also.

It may not be easy, but I think things have have great potential.  

Hang in there Snowflake.

Best,
willy

[Snowflake]

 

[willy]

   Aw shucks thanks.

The greatest thing about boards is you get a wide range of information and opinions.  We all help each other with the information.  Thanks; it is a great place, isn't it?

Willy

[Ikiru]

         
       Don,

 How are you feeling since you finished the therapy? Were you sick before you started? My doctor said if the virus was cleared by the 12 week i would have a good chance at SVR. I am praying thats the case.Good Luck
   

I'm feeling great since finishing.  It seemed like every week I felt better and better and these days I wouldn't know that I had ever been on tx.  I wasn't really sick prior to tx although I was having some symptoms.

I'd have to agree with your doctor.  With your genotype chances are you will get the SVR.  When summer comes around you should be virus free.

Don

[milkmonkey]

Hi snowflake--

I have been on the board about 5 months now and can't say enough about it.

good luck with your treatment!  It is kind of exciting for you--your chance to kick this thing in the a@$!  

Hey--I am on treatment, week #5, and I am here to tell you it is not THAT BAD (for me).  I have had a couple reactions which are being managed, but overall--we were agreeing on the "Starting treatment/On treatment" thread that many of us have experienced POSITIVE side effects so far from being on treatment!  Like feeling more energetic, less depressed, etc.  I have noticed a mental fog lifting!  

I don't want to paint too rosy of a picture--there are some rough days, too. Rough weeks even.  Talk to your doctor and see if there is a support group in your area.  Keep posting here!  We can give you the "real" picture of our experiences on treatment.  It hits everyone differently, but there are some common side effects we deal with.

Anyhoo--I want to point you in the direction of the thread I started in October entitled: "On treatment? Starting treatment? Check in here!"  It is on the same page as the main discussion board your topic is on, just look for that title and click on it.  We have developed a nice little group there and have been chatting about side effects, support, etc.  We would love it if you could "pop in" and introduce yourself!

Take care--

Kristy

[Snowflake]

 

[Snowflake]

 

[Snowflake]

 

[countrygirl]

Hi Snowflake,

Have you contacted your Dr.'s office to alert them to the fact that you have not yet received your meds and also see if they did, in fact, send in the prescription as they said they would? Hopefully they followed thru on it, but there is always that margin of human error.  

I would assume as with many packages sent in the mail, especially drugs, that they would have a way of checking their status from Point A to Point B.

The waiting game is the PITS!!!

Hang in there and in the meantime, keep yourself healthy. Keep us posted on how things work out.

Pam

[iluvkkts]

  :)HEY SNOWFLAKE,

I READ YOUR NOTE AND WE SOUND ALOT ALIKE!! I WAS ON THE INTERFERON ABOUT 4 OR 5 YEARS AGO AND ENDED UP IN THE HOSPITAL AFTER ABOUT 6 OR 8 WEEKS. MY DOCTOR WAS A CARING PERSON BUT I WAS HIS 1ST PATIENT ON INTERFURON AND I REALLY SOMETIMES FELT LIKE IT!!! I DON'T KNOW IF IT WAS MY BODY OR SOMETHING HE DID WRONG, BUT I GOT OF IT, HE SAID THER WAS NOTHING ELSE I COULD DO. BOY AFTER A NEAR DEATH EXPERIANCE(I FELT LIKE!!!) AND HAVING THE DEPRESSION SO BAD I FELT LIKE HE HAD GIVEN ME MY WALKING PAPERS!!

AFTER I GOT OUT OF THE HOSPITAL I FOUND A SUPPORT GROUP IN MEMPHIS, NOT  TO FAR FROM WHERE I LIVE. I WENT ALOT AND REALLY MET ALOT OF GREAT PEOPLE. WELL NOW ALL THESE YEARS LATER I AM I THINK FIXING TO START THE PEGUSYS. MY 22 YR OLD DAUGHTER IS GOING WITH ME MONDAY(12TH) AND WE ARE SEEING THE DR AT THE UT HEPOTOLOGY GROUP IN MEMPHIS, THAT IS WHO I SWITCHED TO AFTER I RECOVERED FROM THE "HOSPITAL AND SHOT EXPERIENCE"!!! THEY ARE REALLY A GOOD GROUP AND THE PEOPLE THER SEEM SO CARING ABOUT YOU AND YOUR FEELINGS. I WENT BACK IN MARCH AND THEY TOLD ME ABOUT THE PEGUSYS(IT WASN'T OUT WHEN I FIRST WAS DIAGNOSED). THEY TOLD ME TO THINK ABOUT IT AND TALK IT OVER WITH MY FAMILY AND LET THEM KNOW. SO THAT IS WHAT I AM DOING MONDAY. I REALLY DON'T WANT TO DO THIS AND I AM TRING NOT TO GO INTO IT WITH A BAD ATTITUDE BUT THE CLOSER IT GETS THE MORE I HAVE BEEN CRYING!!!!

BUT ALL I CAN DO IS TRY IT AND SEE HOW IT WORKS, AND THEN AT LEAST I CAN SAY THAT I HAVE DONE EVERYTHING I COULD. I KNOW THAT WHAT I AM SAYING SOUNDS SO DRAMATIC, AND I DON'T MEAN IT THAT WAY, BUT LIKE YOU WHEN YOU HAVE 1 BAD EXPERIANCE, IT LEAVES A BAD TASTE IN YOUR MOUTH!!! I HAVE  GREAT FAMILY SUPPORT BUT I AM STILL SCARED TO DEATH!!

DO YOU FEEL LIKE THAT??

LET ME KNOW HOW IT GOES AND I WILL LET YOU KNOW TOO. THIS IS A GREAT SITE, THE PEOPLE HERE ARE SO GINUINE AND HONEST.

GOOD LUCK,
ILUVKKTS

[Snowflake]

 

[Snowflake]

 

[Snowflake]