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Author Topic: Day By Day  (Read 1213 times)
pixie
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« on: January 04, 2008, 11:38:20 AM »

Last year before treatment started jb wrote this song....I will post the words here and when he got time I will ask him to put the song up as well.....He is redoing his website so its out of order....

Day by day I sit and watch it grow
Night by night I'm on my knees praying it will go
Almost a year of living with fear
And at the end will it be so clear
I got a plan that never failed me before
One night a week I'll try and settle the score
It burns inside as it's looking for some place to hide
I got to be strong cause I am going to be weak
Aint no words I can use to tell
How I deal with this living hell
A combination of different therapies
And all night long I toss and turn myself to sleep
Then the rage comes in and I've got to keep it there
No one knows and I don't think they really care
There's very few that really understand
Just how much it takes to kill
It?s a hellish road and a hellish mountain we climb
And day by day I sit and watch it grow
Night by night I'm on my knees praying it will go
brodo 2006
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Geno 1b, did 48 weeks tx got SVR..
Was one of the lucky 20% with no sides thru treatment...

From Cornwall UK.........
Dude
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« Reply #1 on: January 04, 2008, 03:34:44 PM »

Intense, poigniant, and perfected by long-suffering. Great art, JB, thank you for sharing it, Chrissy.

I should like to see lot's more.
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He maketh the storm to cease
Hank's mom
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« Reply #2 on: January 05, 2008, 06:00:12 PM »

Hey Pixie -

It's always good to see or r read that a hepper has taken the time to describe their journey in real terms, from their experience and/or that of a loved one who is also a best friend.

I burned a CD for myself for the long rides to my doc and the sitting and waiting while I'm there. I do this periodically because unfortunately I use them up all too quickly - I'm sure you can relate. I would love to hear your's and JB's song so I can add it as well.

Thanks,
Susie
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"Find out who's the Victim. If you can't tell, it's you."  –Yardley

"… One hand full with quietness, beats two hands full of vexation of spirit"  – Amarillo Slim

Both referring to the game of poker.
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« Reply #3 on: January 06, 2008, 04:41:53 AM »

That is an awesome writing!  I too would love to hear the song and look forward to your posting of it.

Pixie, thank you so much for sharing it....and JB you have real talent.  Hope we see more of your works.

Holding you both in thought and prayer,

Lee
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"Scars remind us of where we have been but they do not have to dictate where we are going."
pete c
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« Reply #4 on: January 06, 2008, 06:17:31 AM »

HI Pixie & JB
I just want to thank you for the writeing,it,s real and it give me a heads up on what iam about to enter into.

 God Bless                                                            pete c
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Geno type 3a  cirrhosis of the liver  undi at 12weeks& 24,48.
can,t always get what you want, but you always get what you need. stay true to thine own self.
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« Reply #5 on: January 06, 2008, 09:39:48 PM »

Keep sharing Pixie.  We need to hear it.  Whole Bunches of Hugs and Smiles. Kristi
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« Reply #6 on: January 07, 2008, 05:19:46 AM »

And day by day I sit and watch it grow
Night by night I'm on my knees praying it will go

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Joris, you couldn't have said it any better.  This line is my favorite.

Thanks for posting this up, Pix


Kerry
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“Take the first step, and your mind will mobilize all its forces to your aid. But the first essential is that you begin. Once the battle is startled, all that is within and without you will come to your assistance.”
pixie
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« Reply #7 on: January 08, 2008, 04:35:09 AM »

Jb posted the words to this somewhere have you all heard it I will try and find the thread...Px

Jb working on new songs now so gotta be quiet...SHHHH..Px
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Geno 1b, did 48 weeks tx got SVR..
Was one of the lucky 20% with no sides thru treatment...

From Cornwall UK.........
KatNyerHAT
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« Reply #8 on: January 17, 2008, 10:56:22 AM »

Yes, I'm going to have to agree with everyone here...  The words hit home.  Can't wait to hear the song, too!!!   Grin Grin

Hugs,
Kat
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Geno 1B, non responder after 12 weeks of PegIntron/Riba.  Attempted the Telaprevir trial, couldn't tolerate. Stage 4, grade 4 cirrhosis.  You should go out an enjoy life! And cherish every precious second of it!
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