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12 wks Under the Belt.
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RedRodeo
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12 wks Under the Belt.
«
on:
February 26, 2008, 04:25:37 PM »
I had an apt w/ my GI today. Last thursday the nurse told me to d/c the Riba until my apt. He said our plan now was to stay off of the riba until my hgb rose to 10 and to continue the intron. I asked him how this was going to affect the outcome and he said over time its not ideal but since Ive already cleared he was still hopeful. Easy for him to say!!!I asked him about a transfusion he wasn't to excited about that. I still feel like shit. Today they check viral loads but that takes awhile to get the results. I am 3 months into this.
So thats my update. Scattered.....
Red
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Betty W.
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Before you can achieve, you must first BELIEVE
Re: 12 wks Under the Belt.
«
Reply #1 on:
February 26, 2008, 04:48:46 PM »
Red, its good to hear from you. I was anxious to see what the doctor had to say. Please dont get discouraged,try to keep on keeping on. I don/t have any idea how you are feeling, and I can't pretend to know. I just hope that you will stay the course until you have exhausted all alternatives. Life is so short,we have so much to live for, maybe thats why we try these horrible txs.Did he have anything to say about a psyc.? Love and Prayer.....Betty
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Its the choices in life that make us who we are, so lets do it right !
geno 1A Biopsy stage 0
subverzn
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Re: 12 wks Under the Belt.
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Reply #2 on:
February 26, 2008, 05:05:06 PM »
Red!!
Congratulations on the 12 week milestone..
Your doin it...
and your undetectable... (keeping thinking of that!)
It's a battle but you are kickin virus butt*
I'm soon off for shot 22... can't believe i've been doing it since october.
the time does go by...
been a long day here but i wanted to congratulate you on making it this far*
pammie
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Just another loverly day in Hooterville, PA
started tx 10/2/07
genotype 1b
viral load 12,500,000 at start
VL week 24 - 550,000
hcv merged with german dna... stubborn version..
"always look on the bright side of life..do do, ...."
negative1
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Let me think on that a bit
Re: 12 wks Under the Belt.
«
Reply #3 on:
February 26, 2008, 06:09:32 PM »
Hey Chris.
12 weeks is halfway for you!
Youu can do it now.
Earl
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you may know somebody in a similar
situation, or you may be in a similar situation, and if your in a
situation like that there's only one thing you can do and that's walk into
the shrink wherever you are ,just walk in say "Shrink, You can get
anything you want, at Alice's restaurant.". A. Guthri
beingbecky
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Re: 12 wks Under the Belt.
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Reply #4 on:
February 26, 2008, 08:19:03 PM »
Half way there Red. That's a huge milestone, keep on trucking, or trudging along.
Heres a picture that depicts the way I felt on treatment.
Hang in there Red!
Becky
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Michelle2007
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Re: 12 wks Under the Belt.
«
Reply #5 on:
February 26, 2008, 11:35:54 PM »
Congrats Chris!
I DO know how you feel. I wish I was half way done....hell, I wish I was done...but you CAN do this. My big issue right now is 1) my skin hurts all the time 2) Not one drop of energy. I can't stand longer than 10 minutes it seems. Makes it hard to grocery shop or even eat something. But you are still in my prayers. And God is with you every step of the way. He won't ever give you more than you can handle. It may suck but I know and He knows you can do it.
be good to yourself.
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RedRodeo
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Re: 12 wks Under the Belt.
«
Reply #6 on:
February 27, 2008, 10:57:37 AM »
My MD originally got me thinking about doing this again but he was talking about 24wks, Now He is using the time 48 wks!!!!!!Six months was alot to swallow but I thought I could do that. And as it turned out just doing 3 months has killed me. So I don't know about 48 wks. God Bless All of You
Red
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kentucky
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Re: 12 wks Under the Belt.
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Reply #7 on:
February 27, 2008, 11:19:59 AM »
i did 43 weeks for type 3A.
had the same problems like you.
was on procrit and neupogen the whole time.
and only took 1 full dose of the interferon. the first week. and my bilirubin shot way up.
i had labs everyweek and they stopped my tx completely several times.
and would stop riba for weeks at a time.
anyway i did live thru it and am still undectable. over a year.
good luck. and try not to look in the future too much but stay in today as much as possible.
i am still trying to do that...
which i am glad i went thru it so my liver can regenerate since it is cirrhotic with excessive scarring.
my tumor marker test was elevated a while back and i was worried but it is back to normal.
so i am just thankful that my dr. guided me thru tx even though it was unbearable at times. i thought
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A real friend is one who walks in, when the rest of the world walks out.
Hank's mom
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Re: 12 wks Under the Belt.
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Reply #8 on:
February 27, 2008, 11:39:09 AM »
red -
Yeah you have already done what you thought was impossible. I trust that yo will find the strength to continue - after all, you want to make these initial weeks worth while - I hope.
Best,
Susie
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"Find out who's the Victim. If you can't tell, it's you." –Yardley
"… One hand full with quietness, beats two hands full of vexation of spirit" – Amarillo Slim
Both referring to the game of poker.
cristofero
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Re: 12 wks Under the Belt.
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Reply #9 on:
February 27, 2008, 12:54:58 PM »
Red 12 weeks well done. Keep going.
Chris
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Dx 1996 1a
+ since mid 1970's
int/rib nonresponder 1999
pegasys,riba stopped due to Sxs 2008
Hampton UK
DougV
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Re: 12 wks Under the Belt.
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Reply #10 on:
February 27, 2008, 04:20:14 PM »
Red,
Reducing RIBA and now cutting it for a bit will undoubtedly impact chances, however the success rate of interferon alone is pretty decent with genotype 2 and 3 folks. If it would make you feel better get a PCR right before you go back on RIBA and make sure you still show undetectable.
Keep in mind you are halfway done, your odds with your genotype are still excellent, and heck you only have 12 weeks to go.
Consider this.....
Some theory has the universe around 10 billion years old. That would be 520,000,000,000 weeks based on current weeks. So taken in that perspective 12 weeks is pretty short.
Doug
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Diagnosed 10/04 1a 3/3
Round 1 2005 48wk Pegintron Relapsed
Round 2 2007-08 39wk Infergen Relapse
9/26/08 Diag. Stage 4
Round 3 Pegasus/Riba/Incivik 6/25/11 -
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