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Author Topic: Crazy post but WHAT makes one want to be a moderator?  (Read 1744 times)
OZ
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« Reply #15 on: February 24, 2009, 02:42:28 PM »
1)  To share accuate information
2)  Provide Support
3)  Receive Support
4)  Give back a little of what I was given
5)  Let others know that treatment is survivable

OZ
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negative1
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Let me think on that a bit
« Reply #16 on: February 25, 2009, 02:18:29 AM »
I was honored when asked to be a moderator here. I have been AWOL for the last couple months due to family and personal issues that have taken up all my * mind time*....but

I was helped so much while going through tx 4 years ago at the *HOOD* by many of the people that are now here on this board.....Doug, Missy, Helen, Robin, to name a few.
I never could have gotten through this without all of their help.

Now, after what I went through on tx, I can give back to those thay are going through it themselves. Using what I learned, how I dealt with it and watching what people post here.....seeing the desperation, confusion and helplessness that they are experiencing, I try to give advice.

Thanks to all here for letting me be a part of this forum.

Earl
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you may know somebody in a similar
situation, or you may be in a similar situation, and if your in a
situation like that there's only one thing you can do and that's walk into
the shrink wherever you are ,just walk in say "Shrink, You can get
anything you want, at Alice's restaurant.". A. Guthri
robin
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« Reply #17 on: February 27, 2009, 03:19:38 PM »
Earl...would you like to channel some of your treatment rage (if you can remember how to do that) towards my drug company? I have been fighting for drug approval since Feb. 5 and am on my third appeal. So far, they have told the pharmacist no, my APN has done paperwork twice and been told no, and now my transplant coordinator is helping with the process. Any ideas? We don't qualify for any reduced meds so that's not an option...checked it too. Big smooooch to you and keep your spirits high...robin
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Genotype 1-A
Liver Recipient 11-22-2007
Keep your spirits high...robin
negative1
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Let me think on that a bit
« Reply #18 on: February 27, 2009, 04:30:22 PM »
Actually, I wanted to be a moderator so I could boot Robin when she starts acting up.
That's it in a nutshell
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you may know somebody in a similar
situation, or you may be in a similar situation, and if your in a
situation like that there's only one thing you can do and that's walk into
the shrink wherever you are ,just walk in say "Shrink, You can get
anything you want, at Alice's restaurant.". A. Guthri
DougV
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« Reply #19 on: February 27, 2009, 04:53:38 PM »
Robin,

Lawyer?

Doug
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Diagnosed 10/04 1a 3/3
Round 1 2005 48wk Pegintron Relapsed
Round 2 2007-08 39wk Infergen Relapse
9/26/08 Diag. Stage 4
Round 3 Pegasus/Riba/Incivik 6/25/11 -
negative1
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Let me think on that a bit
« Reply #20 on: February 27, 2009, 05:55:19 PM »
lol.... Grin
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you may know somebody in a similar
situation, or you may be in a similar situation, and if your in a
situation like that there's only one thing you can do and that's walk into
the shrink wherever you are ,just walk in say "Shrink, You can get
anything you want, at Alice's restaurant.". A. Guthri
MissyMouse
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« Reply #21 on: February 27, 2009, 07:40:42 PM »
Robin,

I agree with Doug.  Consult a lawyer.  That's pretty much what it took for me to get Blue Cross of their ever lov'in rears.  Also, ask your doc if he would be willing to talk to his Roche drug rep to see if they will help.  I wasn't eligible for Pegassist either so my GI's drug rep just sent to the drugs to my GI's office.

Mouse
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1a, Stage 4, cirrhosis
Round 1: 48 weeks from 5/19/06 - 4/13/07
Relapsed 9/24/07
Round 2: 72 weeks from 12/11/07 - 4/21/09
Relapsed 5/27/2009
Round 3: 48 weeks from 12/2/2009 - 10/27/10
Third time's a charm ... SVR BABY!!!!
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