HANK...I have a question or anyone else.

[robin]

OK...I am really having an aching liver. Can't think of what I've done to piss it off but it is not a happy camper. Do you think it is just the hepatitis that is bothering me? My urine is dark, again, even with increasing fluids and my right side feels like a deep bruise from the front to my back rib cage. I'm sounding like a sissy girl here but I'm NOT used to this annoyance in my life. Suggestions? Keep your spirits high...robin

[DougV]

Robin,

You might want to email Hank 'cause didn't he say he isn't checking in all that often but would respond quickly to email?  (I kept his email somewhere if you need it.)

And no, while I have no exerience with a transplant, dark urine and a deep pain. don't sound like simple hep to me.  And maybe I'm just a bigger sissy then you think you are, but I'd be calling my docs and asking them what's up.

Doug

[robin]

Thanks Doug...I do think I have Hank's e-mail but I could call in the morning and leave a message since these coordinators DO return phone calls. To be honest, I don't want to have to go to the doctor or lab as I have my grand with me through the week-end. It's not severe pain just like a big bruise getting pressed. Big hugs to you and keep your spirits high...robin

[Hank's mom]

Hope Hank has the answers you need Robin - that tea pee is familiar for sure. With luck and a smile - the answer will be simple, passing and just another entry in the log.

All the best honey,
Susie

[JulieAnn]

You are not a sissy girl!  But you should call your coordinator ASAP.  Please post back and let us know what's going on as soon as you can!
Hugs (((((Robin)))))
Julie

[JulieAnn]

  worried

[hanklive39]

Did you get in touch with your coordinator yet Robin! I ask this because. if you have dark colored urine, and intense pain going through the right side of your body, then there's something definitely going on in there... What exactly it is is something only the transplant team can eventually figure out but remember this, they may not always get the correct diagnosis the first time!!!

Not being a Doctor and all, I've stil, have been around the block a few times myself enough to know that the key symptom indicator is if you are developing a fever of at least a low grade of 101 F, and if you do have one then, get your "Spirit & Body over to the ER ASAP!!! CAPECHE? In other words, do not wait any longer, and head straight over to the Hospital - PRONTO!!! If you don't have a fever yet, the discomfort is very real, then bug the "Blank" out of your coordinator until they get so tired of hearing your voice that they start getting the wheels in motion just so they can quiet you down!!! This is what I sued to do!!! It always worked!!!

I apologize for being late in my response but, yesterday we just finished another session and had to give them a final exam for it so, it took a large portion of my time to put it together because, of the potential of the students getting a copy of the same segment's final exam which was given last year!!! It may be the beginnings of a slight bacterial infection which is very common for us transplant survivors being that our own immune systems are now permanently compromised due to the anti-rejection meds, and yet even to this day, I still haven't gotten used to them. BTW, you ARE NOT A SISSY!!!! YOU ARE A FIGHTER!!! It just so happens that you're in the fight for your life!!! Also, when one is experiencing pain, one isn't expected to have their spirits so high! PAINS SUCKS BIG TIME!!!

Anywho, I hope you're feeling better.

Respectfully,
Hank
l

[robin]

Thanks Hank for your response and it was plenty quick and besides, I've not logged on here for a couple of days. Never got a fever so I'll have labs done Tuesday. Not hurting as much but it's so weird because even my ribs are tender when you press them. So, the intelligent person does NOT press on them, right? I will make sure I don't start up with a fever because I've been told if it hits 101 to call. Trying to drink extra fluids but it isn't making much of a difference, other than I get to get up a dozen times during the night to go pee and can't make it through an hour talk show. Oh well...life IS good. keep your spirits high...robin

[JulieAnn]

Hi Robin, glad to see your post and that there's no fever involved.  I've been thinking about you and sending prayers and good wishes that whatever's going on will clear up.
Julie