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| | |-+  Now I'm Annoyed
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Author Topic: Now I'm Annoyed  (Read 1314 times)
robin
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« on: December 19, 2008, 11:35:07 AM »

Just got the call from the transplant coordinator and they are wanted to biopsy my liver on Monday. I vetoed that idea and used the rationale that I had been pressing to treat for months so I didn't see why they should get all in a tizzy because my LFT's are now increasing at a "concerning" rate. So, I will be seeing the doctor and will not be able to consider retreating until the biopsy results are done, after the first of the year.
To try to make peace in my head, I tell myself that I knew my liver was unhappy so I shouldn't concern myself but it really annoys me that today they want to change the pace and start getting aggressive. Why not three months ago, or six months ago when they initially said I could treat. Why not before my LFT's AND my clotting time AND my kidney function tests all became elevated and abnormal. WHY? I guess to annoy me. Bah Humbug
To add insult to injury, they also want me to have the biopsy in Little Rock. I'm fighting that one tooth and nail. Whatever gets done will now be done on my terms. Their opportunity is gone.
Keep you spirits high...robin

PS...sorry for being so assy about this, tis the holiday season, family comes tomorrow and we have the three smallest grands staying until Monday morning. Lots to be thankful for.   
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Genotype 1-A
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Keep your spirits high...robin
Mongo
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« Reply #1 on: December 19, 2008, 03:09:49 PM »



Robin,

You have that gratitude thing going on, and that's going to pay dividends.  Our friend Pete says it best when he says, "Accepting life on life's terms".

I hope you can into a peaceful place to look at these events, and let the answers reveal themselves. 


Mongo
President of the Arizona Chapter of the "We dig Robin" fan club.


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“Take the first step, and your mind will mobilize all its forces to your aid. But the first essential is that you begin. Once the battle is startled, all that is within and without you will come to your assistance.”
DougV
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« Reply #2 on: December 19, 2008, 06:31:10 PM »

Why not three months ago, or six months ago when they initially said I could treat.   

That's an easy one.  I can only assume they had already used up all their annoy Robin minutes for 2008 and needed to roll annoyance over to 2009.  Least that's the way I see it.......

Plus as an added bonus you get to get a biopsy, man oh man, the thrill, the rush, the pleasure, I dunno Robin, what more can you ask for?  Shocked

Merry Christmas.

Doug
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Diagnosed 10/04 1a 3/3
Round 1 2005 48wk Pegintron Relapsed
Round 2 2007-08 39wk Infergen Relapse
9/26/08 Diag. Stage 4
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Kira
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« Reply #3 on: December 19, 2008, 11:36:26 PM »

That all is annoying, Robin.  How could they expect you to plan a biopsy a few days from Christmas?
I hope you can enjoy your family, and Christmas, and forget about it all for the next week or so.

Cris
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pete c
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« Reply #4 on: December 20, 2008, 03:56:08 AM »


  Hi Robin

   you hang in there sunshine and stand your ground. will keep you in thoughts and prayer my friend. For now just enjoy the day the best you can. I,am here for you ,ok

                                                               Pete
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can,t always get what you want, but you always get what you need. stay true to thine own self.
emkins1
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« Reply #5 on: December 20, 2008, 06:34:47 AM »

Robin,

I dunno why "people in charge of your life" have to make things so complicated and...and...annoying!  When it's all over and you're safe from some angry nurse's needle, I hope you can chew somebody out.

Em
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robin
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« Reply #6 on: December 20, 2008, 10:32:49 AM »

Awwww...thank you all. It does seem that they are spreading my annoying minutes into 2009 but I get so easily annoyed, I have put get my minutes in a bulk plan. I appreciate you helping me see the humor in it all. MWAH...keep your spirits high...robin
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Keep your spirits high...robin
kentucky
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« Reply #7 on: December 26, 2008, 10:51:52 AM »

did  you have your biopsy? if so, when do  you find out the results?
remember one day at a time
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« Reply #8 on: December 26, 2008, 07:18:24 PM »

Hey Robin,
How did the biopsy go?  Hope you were still able to enjoy Christmas.  Keeping you in my prayers.
Cathy
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tx 2001-clinical trial supposed to be 9 mos. stopped at 6, relapsed
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Every day is a gift from God.  How you use it is your gift to Him.
robin
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« Reply #9 on: December 27, 2008, 09:46:18 AM »

Well...I asked that we not do the biopsy until after the first of the year so I don't even know when they are scheduling me. Felt like they got all in a hurry when I had been pressing for months. By the time they wanted to do something, I was quite comfortable with as they were so now I'm the one with sluggish feet. I'll let y'all know when they schedule me. keep your spirits high...robin 
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Keep your spirits high...robin
19Dragon52
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« Reply #10 on: December 27, 2008, 06:51:21 PM »

{{{{{Hey Robin!}}}}}

Just don't give them a peep show this time around.  That'll teach 'em!!!!!  Cheesy

Love Ya...Hang Tight..... Cool
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~We Cannot Fail Unless We Quit Trying~

Love,
Joyce aka 19Dragon52
robin
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« Reply #11 on: December 28, 2008, 10:41:04 AM »

Joyce...that is really kind of funny because when I was in ICU, I thought the camera they had to monitor patients from the nurses station was "showing" on YouTube. I threw a fit because the camera was aimed from the foot of my bed so I kept complaining that everytime they moved the cover...everyone on YouTube could see me. I was flashing for a "peep show", even then. LOL.  Keep your spirits high...robin
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Keep your spirits high...robin
TED
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« Reply #12 on: January 06, 2009, 12:39:09 PM »

  robin, hope your biospy if you had it all went fine.enjoy your n/year. sure all will be ok.
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pete c
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« Reply #13 on: January 06, 2009, 01:44:55 PM »

 Hey robin

 Sorry i miss the you tube show darn any way  Grin

  Hey dont sweat the small stuff and every thing in life is small.
Things will work out for you  just keep doing the next right thing
Stay strong in your journey  just for today . will keep you in my prayers

                           Love ya       pete
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Geno type 3a  cirrhosis of the liver  undi at 12weeks& 24,48.
can,t always get what you want, but you always get what you need. stay true to thine own self.
beingbecky
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« Reply #14 on: January 06, 2009, 07:50:50 PM »

Robin,

I am having a San Francisco flashback, you little flasher you.  Cheesy Cheesy

Well good luck with the biopsy, oh what fun in the world of hepper land.

I am here for you.

Becky  Kiss   
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