post transplant back on meds july 2008

TED

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post transplant back on meds july 2008

« on: January 05, 2009, 09:02:31 PM »

transplant may 16 2007 mount sinai new york city complete success the best i felt in yrs. but of course went back on interfreon,etc july 2008. its been 6months doctors took me off rivabrivin twice blood was,is very very low. just been told i been given ok for progrit.from insur. so I TRY AGAIN, & AGAIN I,M SO TIED OF THIS REALLY. BUT I,M STILL HERE & GIVING HELL BUT NOT LIKE BEFORE.


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MissyMouse

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Re: post transplant back on meds july 2008

« Reply #1 on: January 06, 2009, 08:35:27 AM »

Ted,

I just wanted you to know I'll be pulling for ya. I hope HankLive39 sees your post, he's probably the most experienced post transplant person I've ever interacted with.

Keep on keep'in on.

Mouse


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1a, Stage 4, cirrhosis
Round 1: 48 weeks from 5/19/06 - 4/13/07
Relapsed 9/24/07
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Third time's a charm ... SVR BABY!!!!

Snowflake

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TO EACH HIS OWN

Re: post transplant back on meds july 2008

« Reply #2 on: January 06, 2009, 10:56:53 AM »

Ted,

Welcome... Grin

It is understandable you being tired, it takes alot out of a person, mentally and physically. You are doing what you can, which is to try... My heart goes out to you and i wish you the best... Try to stay possitive... Wink

We have a couple of people here with transplants, Hank as well as Robin. I hope you stick around, there is alot of support to be found. If you need to vent, let it fly, we are hear to listen. And help in anyway possible...

TAKE CARE
Winona


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TED

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Re: post transplant back on meds july 2008

« Reply #3 on: January 06, 2009, 12:31:47 PM »

to all that replied to my post--thanks.its really super to hear from all.specialty post liver.


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robin

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Re: post transplant back on meds july 2008

« Reply #4 on: January 07, 2009, 01:59:36 PM »

Hey Ted,

We are both about the same place so far as our transplant status...think you are a few months ahead of me. How soon after you were transplanted did they start you on treatment? Were you biopsied? What prompted them to start treatment?

Sorry about all the questions but I've just been advised that my LFT's are elevating so quickly now that it's reached the point of biopsy and treatment. I've talked to a couple of people with hep who have treated, one person didn't complete treatment and the other did and has SVR for four years.

Best of luck to you and keep your spirits high...robin