I'm rejecting...ain't that some crap?

[robin]

Just got a call a bit ago from my transplant coordinator and I'm impressed...the really do call you back, but it's not the hepatitis that is irritating my liver but rather an episode of rejection which totally messes with my plans. They are changing up some meds, doing labs again in a week and I'm scheduled for an appointment on the 5th but they won't let me start treatment right now because of the rejection. They say that treatment also increases you chance of rejection so that is in the friggin trash can for now.

On the good side, I was totally buzzed for the biopsy...never took valium and between the valium and versed, I hustled the e-mail address of this cute little male nurse. This morning Tom gave me the cutie pie's e-mail on a piece of paper and apparently I gave him a big hug as he wheeled me to recovery. Dang, I'm a tramp when my mental state is altered...hustling my boy-nurse in front of my husband. AND the hubby is the one who brought home the e-mail addy for me. 

So, wish my liver luck on this next little adventure we are embarking on...keep you spirits high...robin 

[Pancho and Lefty]

Robin,

I really don't know anything about the rejection issues. . . although it can't be the best news. I'll keep you in my prayers. OTOH, sounds like you're all set for an online romance?

That's got to be good.

Here's wishing you the best,

Max

[MissyMouse]

Robin,

I'm so sorry, I know how  much you wanted to start treating.  But you keep hanging tough, you will get there when the time is right.

Mouse

[DougV]

Robin,

I think that is actually good news isn't it?  Change of meds might take care of rejection issue, hep is much harder I would think.

Either way at least you know.

BUT, ya didn't ask me for my phone number.  I'm devastated, crushed, and rejected.  Come on what's your boy toy got I ain't got?  You better count your lucky stars I won't tell my wife about this. 

Doug

[JulieAnn]

Hi Robin,
I've been off the forum and pretty quiet lately with so many other things going on, so now that I'm checking back in I was not happy to see your post!  I think the reason I came here tonight is because my brother is also having rejection.  I have read that treating Hep C can cause rejection, and my brother's team have told him that as well.  They will not let him treat his Hep C while he's also dealing with that ITP platelet disorder anyway.  They are saying his rejection is chronic and they are putting him back on the list for another liver.    I'm not sure how to feel about that since they say all the problems he has had since his transplant are because his body doesn't like this liver.  So I'm hopeful a new liver will improve his quality of life. 

But back to you!  I guess I shared that so you wouldn't feel alone with the rejection, but hopefully yours is very explainable and they can halt it with a change of meds.  I know you're disappointed to stop the treatment, but maybe they've got some other tricks up their sleeves to get your liver stable and then try again.

I know you are strong and will get through this.  Please keep us posted!  And of course you will be in my prayers.

Julie

[Betty W.]

Robin, I do not understand this rejection thing.....You have been through so much lately going to Disney and meeting "the mouse", Doug, and The Bill, so if anyone cane get through this YOU CAN, I will help with all my prayers.....that I do understand  !!!! I love you Bobbin,,,,HUGS,,,Betty

[pete c]

    My Dear Robin

      I too don,t know about rejection  of the type you are going though, so i too will keep you in my prayers my dear friend.

    From the sounds of it if any one can get though  hanging with Doug and Missy and Bill all at the same time you can get though this , . You hang in there sunshine ,and take it easy on your new boy toy you he is young and may not be able to hang  so watch that you don,t hurt him too bad. Love you  and talk at you later.

                                                                         Pete.

[19Dragon52]

{{{{{Robin}}}}}

I am really sorry to read your news!  I can hear how disappointed you are about not being able to start TX right now, too but First things First, yes?!  I will be praying for You "Showers of Blessings" that the change of meds will be pertinent with turning around this current episode of rejection.  Then, as Mousie said, "You will get there when the time is right."  Meanwhile you have a "Boy Toy" and a Husband that is willing to do his bidding!  That should keep you occupied!

Always Wanting the Best For You & Much Love,
..... .....


{{{{{Hi JulieAnn!}}}}}

Praying that You & Your Brother will have the needed Strength to manage through a Second Transplant.  Hope you will stick around and let us Support You & Love You as you walk by his side.  It's nice to hear how Hopeful you are; Stay Positive!

Love & Prayers.....

 

 

[willy]

Robin, I hope that they can get the rejection issues straightened around by tweaking your drugs.  If they can you may end up feeling better and being able to start TX.  I'm really not up on what they do in this case but hope it comes around for you.

So far as flirting with male nurses...... all I can say is that it could have been worse.   

I was telling one of my co-workers about my son and how "out of it" he was when he got his wisdom teeth out.  My co-worker told me that he son was also looped on whatever he was given and so she thought it was a good time to start kidding him and asking him if he had done the deed with his HS girlfriend yet.   

That is just not fair.

As Ed McMahon used to say......"feeling NO pain."

Hang in there you cougar.

Willy

[Lee]

Robin,

I was sorry to read your post....but as others have said, way better than I...the adjustment of drugs may be the answer...try to hold to that and wait to see...not easy I know....we are all pulling for you...and are here in anyway we can be.

Please let us know how things are going.

Holding you in thought and prayer,

Lee

[Longleggsfromwa]

Robin,
  I am so sorry to hear about your rejection.{ I did smile when I read about the Male nurse e-mail} Hang in there girl I know you are a fighter.I will keep praying for you,
                                                Pam

[robin]

Thank you each and every one. It means a lot having y'all to back me up. My sweet Doug, I already have your e-mail addy and I got it without my valium/versed high impairment. Oh Willy, I am soooo not a cougar but maybe a valium tramp would be a better description  . Max...I do intend to take this little man-boy nurse hustle act I did all the way to Nashville. I plan on him being a money maker for TeamThanksgiving LOL. Missy, you do know how disappointed I am because you have listened to me whine about my wanting to treat for...well a long time. I still think you are a tough little mouse  . Pete...you think it was a hang-tough in Orlando, just wait until NC at Betty's (Betty...you don't know what you are in for). We do need to see Doug come along and we will really have a flashing party on the waterfront. Joyce, you know I put the make on that cute nurse, Andrew. Nobody could have done it better, well except maybe you  . Lee, you are right, the medication adjustment should work...I'm more annoyed that I can't treat at this time. Pam, congrats on one down and 47 to go.
{{{{Julieanne}}}} and {{{{{Ricky}}}}}}} I am so sorry. Ricky has had such a horrid time with this liver that maybe a second transplant will turn life around for him. I wish I had words for you to express how sorry I am. Your brother has been blessed with family for support and that is important.  let him know that he is in our thoughts.
I hope I addressed everyone because it means a lot to have your support. keep your spirits high...robin

[beingbecky]

Robin,

What a messed up deal having a rejection going on. Sorry to hear that kind of news.

I do get a smile though visualizing you flirting with that male nurse. 

Love yah friend! Hang in!

Beckers 

[beingbecky]

Julie,

I just got done reading your post as well. I am sorry to hear about your brother as well. I hope he gets a liver, and heads down the road to getting better. I hate this disease. May you stay strong through all this and you both are in my prayers.

Becky   

[Hank's mom]

Hey Beautiful Robin -

Andrew Cando needs you to pull this thing off! (The boy needs to dream, don't you think?!)

This is the kind of news that can send you in a tail-spin (maybe that explains Andrew, hmmmm) but is often not as bad as it seems - Scary words, yes - A sure thing, not till you know for sure. I am terrible at doing this for myself, but try not to let yourself worry this into being. You have fought too hard and long and I'm sure, other than Andrew, made the TP staff afraid to let this end on anything other than a good note. I'll see you at Betty's and will remember to wax.

Julie Angel - I am so sorry to hear about your brother, but by the way you write about him, he is far too loved to go it alone. I trust your strength to help him see this through. When I went on the Liver Walk last fall, there was a couple who together had gone through her husband's 1st and 2nd (last) transplant. To say the least they were very happy. It was as if all the fears and long hours had melted from them because he is now so hearty and healthy. I guess they were in their 30s, and have their whole lives together ahead of them now for having done what was necessary for him to be well and whole.

Much love to you all,
Susie