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| | |-+  Has anyone seen a little birdy fly by lately?
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Author Topic: Has anyone seen a little birdy fly by lately?  (Read 722 times)
KatNyerHAT
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« on: April 12, 2009, 08:34:37 PM »

I know it's rare for me to drop by these days but when I do have a moment, I like to read to catch up on how everyone's doing.  I haven't seen Robin in awhile and since I was really busy these past weeks, I thought I'd check on her.  Don't like really putting other people's business in the threads but you all know me when I start to worry, I get a little frantic.

Called Jill and now that Robin's got a little home of her own, I wasn't able to chat with her on the phone because I didn't want to use up her prepaid minutes.  Jill did give me a run on her and it appears her kidneys are still doing poorly.  So Robin, if you're out there reading this, please drop by and let everyone know how you're doing.  I know Wednesday is shot night so it's rough on those days but anytime you feel like, please give us an update!!!  Sure hope your kidneys can hang in there for the duration of tx.  Cry

Miss'n and Loving U!  Kiss
Kat
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Geno 1B, non responder after 12 weeks of PegIntron/Riba.  Attempted the Telaprevir trial, couldn't tolerate. Stage 4, grade 4 cirrhosis.  You should go out an enjoy life! And cherish every precious second of it!
MissyMouse
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« Reply #1 on: April 13, 2009, 03:15:53 PM »

Kat,

I've not heard a tweet, tweet, tweet out of our little birdy since I sent her the meds.   I swear I'm going to catch up with calling everyone when I finish up treatment (that would include you dear).

Hugs,

Mouse
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1a, Stage 4, cirrhosis
Round 1: 48 weeks from 5/19/06 - 4/13/07
Relapsed 9/24/07
Round 2: 72 weeks from 12/11/07 - 4/21/09
Relapsed 5/27/2009
Round 3: 48 weeks from 12/2/2009 - 10/27/10
Third time's a charm ... SVR BABY!!!!
willy
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« Reply #2 on: April 13, 2009, 04:39:51 PM »

Not I but last I heard there was a log in issue but I think it got corrected. If has not been I hope that Robin will phone or PM one of us or a friend who will contact us.

I know that it has been stressful and it is merely possible that she is dealing with things that she must.

I hope that she is doing OK   It would be nice just to get an update whether it is from Robin or not.  People like to hear that she is well and not sick.

best,
Willy
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KatNyerHAT
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« Reply #3 on: April 13, 2009, 04:57:15 PM »

Thanks, Willy and Missy.  Smiley

Finally... I received an email from her today.  It's been rough/tough for her.  She's coping the best she can, the little trooper she is.  The biggest issue is her kidneys.   They won't even put her on riba until her kidney's cooperate which will extend her tx.  Don't they know that she has to pay for her meds.. sheesh!  Let's all say a prayer for her...  She needs all the help she can get... even though I know I'll prolly get one upside the head for my last comment.

Love you - Robin!

Missy, you doll baby, you!!! Not to fret... I'm just elated that you're undie!!!

Big hugs and love,  Kiss Kiss
Kat
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Geno 1B, non responder after 12 weeks of PegIntron/Riba.  Attempted the Telaprevir trial, couldn't tolerate. Stage 4, grade 4 cirrhosis.  You should go out an enjoy life! And cherish every precious second of it!
Betty W.
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« Reply #4 on: April 13, 2009, 04:58:29 PM »

I received a card from Robin saying that she thiught she was going to make it.

She is continueing the fight and that she was going to be ok....

No return address....she needs all the prayers we can muster !!!

Betty

Oh, I forgot....she did e-mail me her daughters telephone and I have the daughters address...
Robin has moved to a house next door to daughters in-laws...If anyone needs ph # or address e-mail me....
« Last Edit: April 13, 2009, 05:10:21 PM by Betty W. » Logged

Its the choices in life that make us who we are, so lets do it right !

geno 1A Biopsy stage 0
KatNyerHAT
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« Reply #5 on: April 14, 2009, 10:07:07 PM »

Betty, Smiley

How sweet of the lil bird.  She is a true fighter.  If anyone can beat the dragon, it's her.  I just wish her kidneys would do better.  She's got to get on the Riba.

Robin's actually in the house next door to her daughter's mother in law, which is a true blessing.  Should she need anything, she's right next door.  How cool is that?  She did sound a little down, so hopefully, they can get her anti-d dosage just right.  Still, overall, I think she's going to make it.

Bigs hugs to you!  And to the little bird.
Kat
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Geno 1B, non responder after 12 weeks of PegIntron/Riba.  Attempted the Telaprevir trial, couldn't tolerate. Stage 4, grade 4 cirrhosis.  You should go out an enjoy life! And cherish every precious second of it!
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