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| | |-+  1st injection what will happen
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Author Topic: 1st injection what will happen  (Read 1966 times)
Lee
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« Reply #15 on: June 27, 2009, 04:33:21 AM »

Welcome JK...I was pleased to read that your first shot went well...and that you are doing good.....my sides kind of slowly evolved as time went on....as stated by all, each person is different, each side effect different...just take things as they come...stay positive and in faith always...for you will get through it.

Blessings,

Lee
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"Scars remind us of where we have been but they do not have to dictate where we are going."
pete c
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« Reply #16 on: August 02, 2009, 06:54:28 PM »

 HI JK

 Glad to hear things are going so well for you .  I know there where time during TX i drank so much water i felt like a water ballon,
Funny thing is i still drink as much water as i did during Tx  wonder if you can be come a water addict? Huh Roll Eyes.

 Hang in there man  heres hope for the best for you .


                                                                           pete
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Geno type 3a  cirrhosis of the liver  undi at 12weeks& 24,48.
can,t always get what you want, but you always get what you need. stay true to thine own self.
blueheaven
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« Reply #17 on: September 17, 2009, 01:59:35 PM »

Hi all!

I've been lurking around here for a while now and could use some help.  My DH has HCV geno 1/cirrhosis.  Was on PEG and riba and stopped because he was a NR and developed a severe infection.  He and his doc have decided to try it again (Peg/riba).  This is scary for me as I have no real clue what to expect.   He told me that when he did it before, that it wasn't "too bad"  but he didn't convince me Cry He always wakes up with a bad headache, joint pain, muscle pain etc EVERY DAY and he keeps on keeping on tho he feels like crap!

Thanks for listening...taking it one day at a time Smiley
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MissyMouse
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« Reply #18 on: September 17, 2009, 05:45:07 PM »

Hi Blue,

Nice to see your post.  As far as what to expect... my answer to that would be "the unexpected".  There's no way to predict, only ways to be prepared.  I've done 2 rounds of treatment and both my husband and I survived them both.  Patience is going to be key.

When is tx supposed to start?

Mouse
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1a, Stage 4, cirrhosis
Round 1: 48 weeks from 5/19/06 - 4/13/07
Relapsed 9/24/07
Round 2: 72 weeks from 12/11/07 - 4/21/09
Relapsed 5/27/2009
Round 3: 48 weeks from 12/2/2009 - 10/27/10
Third time's a charm ... SVR BABY!!!!
Hank's mom
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« Reply #19 on: September 18, 2009, 06:59:05 AM »

Hey there Heavenly one, welcome -

Though it's been said a multitude of times I'll repeat it - tx is different for everyone - from barely noticeable to a total butt kicker.  Being prepared is important and a big part of that you have already done by joining the forum and asking questions.  I actually didn't join till I was pretty far along thinking this was a very different kind of place - plus, I wanted to tough it alone - ceremony is not the best place to stand at all - but in short order, joining made a huge difference.  I got a family here, who understood what I was talking about, friendship, and support was and still was and is magnificent.

The water has to keep flowing - yes you can have juice for a little more bang for your buck, but the water is key to feeling semi-normal.  I always knew when I had not had enough - headaches were the big clue.  You need to pay close attention to what your body tells you and if you're unsure, call your doctor or if he has a good nurse practitioner  - really important so they know you need help in the form of helper drugs, foods, etc. They may tell you to avoid one thing or another.  If I didn't have my doc's and NP's support I really am not sure I would have made it.

This is a semi-short list of things you MIGHT need:
WATER - count your glasses of water a day if you need to, I used bottled water and counted the empty bottles - our fresh is bad here

EMERGENCY FOODS - peanut butter, nuts, fruit and veggies for a pick up when you need one

WARM CLOTHES - sweats, pj's, whatever for chills, a NICE FAN if you get too hot

HELP FROM FAMILY/FRIENDS - someone to shop or cook or clean - it can make a big difference

A JOURNAL - I wasn't great at this, I used my old posts here for reference - LOL - this is helpful in the long run.

A LIST OF MEDS, DOC'S PHONE NUMBERS - GP, Liver, Dentist, Eye, Mental health person, if you have or need one, that you are treating for Hep C, meds (update if you have to and include over-the-counter, vitamins, etc.), and allergies.

KEEP IT WITH YOU even if you are side effect free. And, how you manage different symptoms, i.e. headaches. ( I learned the hard way and it was stupid and dangerous).

NOTEPAD, BUDDY, TAPE RECORDER - whatever works or is available to you for doc visits, use the item of choice BEFORE for questions to ask, and DURING/AFTER to help keep track of the answers.

BREATHE and make some QUIET TIME - it's easy to get overwhelmed so give yourself a break.

There may be sleep aides, etc. that you need to cope.  If you add or suddenly subtract something let your doc know, for example, I was told ginger is a no, no for me - I have Varices in my esophogis (spell?), which can be effected, this doesn't mean you will be hurt from ginger.

I didn't write this list of preparedness for myself, though in hindsight, I wish I didn't make myself learn everything the hard way, after tx, and while I am on transplant list - DOESN'T MEAN YOU WILL BE ON TRANSPLANT LIST, too.

There is no telling which effects are from Peg or Riba, it could be one or both in combination, either way it is all about chemistry - yours with the addition of this lovely pair.

Sorry I put such a long response to you, but wanted to answer thoroughly.

Susie


 
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"Find out who's the Victim. If you can't tell, it's you."  –Yardley

"… One hand full with quietness, beats two hands full of vexation of spirit"  – Amarillo Slim

Both referring to the game of poker.
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