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Hepatitis C Anonymous, Inc

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Mark Charbonneaux
 


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Hi Glen,

I just read your story (on your other site).  Awesome!  You are like us.  You have seen life inside out and the only reason you are here now is because God had other plans.

I'm so grateful you made this website.  It's given me and Rocky such great info on dealing with this tangle of emotion we are going through now. We need to learn as much as possible.

It's always a positive thing to talk to those who can listen and relate.  This is a great place to do that.

Glenhaven (the recovery home you run) sounds like an answer to a prayer for many people.

I'm grateful that I know that God doesn't live in a big fancy church with stained glass windows, but in the eyes and the hearts of those who trust Him daily.

That may often include the man on the street.  He is (as I have come to know)  my Rock and my Fortress.

May God continue to bless you in your efforts Glen, and I thank you again for your hard work. It is so very much appreciated.

In His Love,
Terri Garcia  ( MaxieG)


What a great site! I just celebrated my 10th yr. anniversary in AA, so this will be a nice compliment to my program. My name is Mary Adams and I am the founder of the Michigan Hepatitis C Foundation. We have been up and running since 1995. My mother died of Hepatitis C in 1998 after a 49 year battle. I was diagnosed in 1996. It is quite an unusual story. Let me know what, when, and how you need a reply for the book...I would be grateful to pass it on!

In Good Health, Mary Adams

Founder: Michigan Hepatitis C Foundation

A special thank you to those who put this very important site together.  I plan to write a personal story about my son's Hep C and will submit it when it is complete.  What wonderful blessings we have.... to be united in fighting this horrid disease.  Thanks again for all your efforts in developing this site.  Please consider using my help.....all you need do is ask.

Bettye, Mother of son, A. J. Stembel

The Texas Liver Coalition has 32 groups (about 1,000 people) around the State. Many of them have been meeting for five, six , and one for 7 years.

About 98% are concerned with Hep C.  The way they work is very similar to 12-Step discussion meetings. They do call in experts (docs, psychologists, dieticians etc.) periodically and those meetings are like Speaker meetings in many ways. The goals of all meetings are to provide emotional support and education to people with liver disease and their loved ones.

We have already borrowed heavily from Bill and Bob. I think that whatever success the groups have is largely due to the fact they are always free, nobody gets pestered for money. I will visit your site and let you know!

Dave Erickson, DrPH

Director of Education

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What a wonderful web site.  You have done a tremendous job.  I am practically your neighbor here in Irvine, CA.  I started a group 5 years ago called Back to Life and recently founded the California Hepatitis C Resource Center.  Please list my web site in your links of resources .  I am in the  process of printing your book to my laser printer.  I will be in touch!
Regards, Carol Craig--California Hepatitis C Resource Center

I would love to distribute some books.  I am going to get in touch with my county partners as they might be interested in starting a 12-step type program.  I think you have a great concept.  So many familiar with the program as applied to substance abuse recovery, etc.
I will read the draft this week.  I will be in touch.
Carol Craig--California Hepatitis C Resource Center

It was nice chatting with you today. I am exceedingly impressed by your site and the work you are doing. You should be very proud. I would very much like to add you to our links page. If we can do anything to assist you, please let us know. As soon as things calm down from the holiday rush, I would like to support you by buying one of the books.

Thanks for the great work you do.

Susie--Hepatitis C Association

Thanks for sending us the information on HCV Anonymous for inclusion on our website. Your website is very impressive! Because of my job, I was especially interested in your extensive number of links. I certainly want to add your site to our "hepprograms" website, and am considering whether it would work better as a program or background resource. 

One question: for "funding source" you said "none." Is this something you have developed totally on your own because of your interest and concern, or do you have the backing of some organization?

However we decide to use the information, I let you know when it is formatted and ready for you to check out. Also, we send information about new programs and resources to subscribers to our list serv every couple of months (over 14,000 individuals), so you will get some press that way.

Thanks again for thinking of us!

Teresa A. Anderson, DDS, MPH

Consultant, Immunization Action Coalition

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I just took a quick gander of your website, it's raining terribly here and I don't like to stay on the computer long at times like this. It looks great and I believe in it! I think it's wonderful that you are helping people with HCV like this and I want to add a link to your site on my website HCVINFO.COM I'll have to read a little more so that I can write out a paragraph or excerpt on what your mission is about with HCV Anonymous, so that I can add it by the link to your site. I'll also share your URL with all my friends with HCV!

God bless you in all your endeavors and I hope to hear from you more. Also, I would like for you to go to my awards section and choose a nice award for helping or caring for people with HCV....just go ahead and pick it out and save it yourself, so I won't have to send it later. Let me know if you have any problem with doing that, ok? You qualify for "any" or "all" of them!! But you probably just want one! Lol!

Much Love and Blessings to you,

Karen Henry

I just received an email from local support group, "Hep C Hope of WNC" about your l2 step program.  I am a recovering alcoholic and have been sober for over 9 years.  I was diagnosed with Hep C over l year ago and I'm scheduled to begin treatment in a couple of weeks.

I like to believe that I am able to live by the principles of AA and that each day I stay sober I have an opportunity to experience a serene life. The truth is that when I was told I had Hep C any serenity I thought I had disappeared, along with my connection to a "power greater than myself." Indeed, I am very human and therefore still have the tendency to retreat in fear when I'm confused, uninformed and subject to my own prejudices.

I didn't even know there was a Hep C, and all I could think of was that I might have transmitted it to my ex-husband.  The local health department delivered the news to me via telephone.  I had no prior information about the disease except that it had something to do with my liver.  I was told over the telephone that it is serious, life threatening and probably explained many of the physical infirmities I have experienced over the past 20 years.  After a month of panic and isolation I began my research.  The more I learned the more I was able to rely on my experience with the steps and principles of AA.   The more I put fear aside the more hope I had.

Although it took me a few months, I finally made contact with the grass roots Hep C support group in Western North Carolina.  I found myself in a room full of people who shared a common disease but did not have a clue about a common solution.  Some were still trying to separate themselves from those of us who may have contracted the disease through drug use.  Those who had blood trans-fusions were very clear that they were victims of tainted blood.  I'm sure this is true.  However, if we concentrate on what separates us we will never be able to be in fellowship with those who share the disease, no matter how they "got" it.

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My research showed that a shared toothbrush, un-sterile dental tools or tattoo needles or being contaminated by someone we were helping in an emergency, or...yes, through illegal drug use, even if it was only once...might have given us the virus.

In my recovery from alcoholism I have learned to go beyond my past mistakes.  I acknowledge them, take responsibility, make my amends and live in the present as a sober member of society. If all of us who made mistakes in the past were marked as severely as those with Hep C I believe we would all be facing l2 months of treatment.   I am very happy today that I do not have to judge another in order to "feel better" about myself.  I am one of many who have a disease.
Hep C is one of many, many diseases.  Today I have faith that I can somehow be a teacher to someone who uses drugs, alcohol, has a tattoo, goes to the dentist, is available in an emergency, or is a doctor, or a nurse or a firefighter, or has had a transfusion or is in the unlucky 3-4 % of those who "got it" from their spouse.  A l2 step program has enabled me to have a life filled with hope and faith and a willingness to be of service to others.

I most sincerely recommend to those who have Hep C to form a fellowship with others who share a common problem so that they can find, as others have, a common solution.  

I applaud you.  Anonymous

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